
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
#Tag
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Who will be our newest supporter this month?! Will it be you or You or maybe YOU!
Support our weird lil #Native led group to let us survive this capitalist hellscape AND keep making #indieGames, #art, & #music for you!
https://comradery.co/aldercone
https://ko-fi.com/aldercone/
https://liberapay.com/heckinTech/
Exclusive doggy posts‽ https://www.patreon.com/wickedflare
#settlerSaturday #CreativeNatives #disabledArtist #MEcfs #autistic #indieDev #AlderconeSupportCrew #mutualAid #chronicIllness #dogs #queer
Who will be our newest supporter this month?! Will it be you or You or maybe YOU!
Support our weird lil #Native led group to let us survive this capitalist hellscape AND keep making #indieGames, #art, & #music for you!
https://comradery.co/aldercone
https://ko-fi.com/aldercone/
https://liberapay.com/heckinTech/
Exclusive doggy posts‽ https://www.patreon.com/wickedflare
#settlerSaturday #CreativeNatives #disabledArtist #MEcfs #autistic #indieDev #AlderconeSupportCrew #mutualAid #chronicIllness #dogs #queer
I just read there will be a protest in Den Haag on 30 november, for better care and policy for people with Post Acute Infection Illnesses.
https://mecentraal.wordpress.com/2025/09/25/30-november-groot-landelijk-pais-protest/
I just read there will be a protest in Den Haag on 30 november, for better care and policy for people with Post Acute Infection Illnesses.
https://mecentraal.wordpress.com/2025/09/25/30-november-groot-landelijk-pais-protest/
From ME Research UK:
Throughout October, we will mark #DysautonomiaAwarenessMonth. #Dysautonomia refers to conditions affecting the autonomic nervous system, such as #PoTS and vasovagal syncope. Dysautonomia can impact quality of life. People with #MECFS often report symptoms. https://tinyurl.com/3f5sxbza
From ME Research UK:
Throughout October, we will mark #DysautonomiaAwarenessMonth. #Dysautonomia refers to conditions affecting the autonomic nervous system, such as #PoTS and vasovagal syncope. Dysautonomia can impact quality of life. People with #MECFS often report symptoms. https://tinyurl.com/3f5sxbza
For just 17 cents a day you can make a HUGE difference for the Aldercones!
If just 1/3 of our followers + 1 of your friends support us monthly, you'll let us rest, pay our bills, & keep making games, community tech, #art, & #music for you!
https://comradery.co/aldercone
https://ko-fi.com/aldercone/
https://liberapay.com/heckinTech/
Exclusive doggy posts‽ https://www.patreon.com/wickedflare
#settlerSaturday #CreativeNatives #disabledArtist #MEcfs #autistic #indieDev #AlderconeSupportCrew #mutualAid #chronicIllness #dogs #queer
🚨 Reminder about groups on the gup.pe server
That domain expired so those groups are no longer valid. But you can follow groups on fedigroups.social
Here are 3 illness related groups that I follow (remove the slashes)
/@mecfs@fedigroups.social
/@longcovid@fedigroups.social
/@pots@fedigroups.social
The follower count is low compared to before so I thought folks might not have learned about issues with gup.pe groups
Boosts welcome! 😁
🚨 Reminder about groups on the gup.pe server
That domain expired so those groups are no longer valid. But you can follow groups on fedigroups.social
Here are 3 illness related groups that I follow (remove the slashes)
/@mecfs@fedigroups.social
/@longcovid@fedigroups.social
/@pots@fedigroups.social
The follower count is low compared to before so I thought folks might not have learned about issues with gup.pe groups
Boosts welcome! 😁
Two new boosting groups are now available to replace the now-defunct Guppe groups!
@mecfs - for ME/CFS, or Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
@pots - for POTS, or Postural (Orthostatic) Tachycardia Syndrome
How it works:
If you tag one of these accounts in a post, the account will boost your post to its followers. Follow the account(s) to have boosted posts appear in your feed.
Please boost this to spread the word! 💚
@tomkindlon
#pwME#MECFS #myalgicencephalomyelitis #chronicfatiguesyndrome#POTS #PosturalOrthostaticTachycardiaSyndrome#PosturalTachycardiaSyndrome#pwLC #LongCovid
Two new boosting groups are now available to replace the now-defunct Guppe groups!
@mecfs - for ME/CFS, or Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
@pots - for POTS, or Postural (Orthostatic) Tachycardia Syndrome
How it works:
If you tag one of these accounts in a post, the account will boost your post to its followers. Follow the account(s) to have boosted posts appear in your feed.
Please boost this to spread the word! 💚
@tomkindlon
#pwME#MECFS #myalgicencephalomyelitis #chronicfatiguesyndrome#POTS #PosturalOrthostaticTachycardiaSyndrome#PosturalTachycardiaSyndrome#pwLC #LongCovid
Danke an alle, die sich zwei Minuten Zeit nehmen, diese Petition für mehr Forschungsgelder für #MEcfs #LongCovid#PostVac zu unterzeichnen.
Danke an alle, die sich zwei Minuten Zeit nehmen, diese Petition für mehr Forschungsgelder für #MEcfs #LongCovid#PostVac zu unterzeichnen.
I'm giving a free workshop and would like to include a "if you can, please donate to X" at the end.
Are there any US mutual aid groups for #MECFS #LongCovid & related conditions y'all recommend?
PNW and smaller, more direct impact preferred. Open to other recommendations as well!
(Mask blocs & covid competent groups are great but mostly in urban areas.)
Thank you!
Sometimes around the late June, my ability to stand upright without a significant fall risk reached the point of severely limited.
In early July, I got a walker. I pretty much only go back and forth between my lift chair in the living room and bed, and toilet for stools (commode chair by the bed on a bad day).
I know this is the spiral toward atrophy and bedbound.
But my rapid decline in other functionality, including cognitive and emotional, has largely plateaued. And it had been getting bad fast.
So not actually exerting myself is helping? I mean, fuck you, #MECFS, but that rapid decline was terrifying, even more than the approaching time of being stuck in bed.
I'm giving a free workshop and would like to include a "if you can, please donate to X" at the end.
Are there any US mutual aid groups for #MECFS #LongCovid & related conditions y'all recommend?
PNW and smaller, more direct impact preferred. Open to other recommendations as well!
(Mask blocs & covid competent groups are great but mostly in urban areas.)
Thank you!
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