Two new boosting groups are now available to replace the now-defunct Guppe groups!

@mecfs - for ME/CFS, or Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

@pots - for POTS, or Postural (Orthostatic) Tachycardia Syndrome

How it works:

If you tag one of these accounts in a post, the account will boost your post to its followers. Follow the account(s) to have boosted posts appear in your feed.

Please boost this to spread the word! 💚

@tomkindlon
#pwME#MECFS #myalgicencephalomyelitis #chronicfatiguesyndrome#POTS #PosturalOrthostaticTachycardiaSyndrome#PosturalTachycardiaSyndrome#pwLC #LongCovid

Two new boosting groups are now available to replace the now-defunct Guppe groups!

@mecfs - for ME/CFS, or Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

@pots - for POTS, or Postural (Orthostatic) Tachycardia Syndrome

How it works:

If you tag one of these accounts in a post, the account will boost your post to its followers. Follow the account(s) to have boosted posts appear in your feed.

Please boost this to spread the word! 💚

@tomkindlon
#pwME#MECFS #myalgicencephalomyelitis #chronicfatiguesyndrome#POTS #PosturalOrthostaticTachycardiaSyndrome#PosturalTachycardiaSyndrome#pwLC #LongCovid

I have just donated to "What Doesn't Kill You" https://whatdoesntkillyou.movie/

Documentaries can be a powerful way to raise awareness & understanding along with empathy.
After looking at some clips and reading this https://www.s4me.info/threads/what-doesnt-kill-you-forthcoming-documentary.45051/ , I'm hopeful this will be good.

@mecfs
#MyalgicEncephalomyelitis#ChronicFatigueSyndrome#MEcfs#CFS#PwME #SevereME

1/

I have just donated to "What Doesn't Kill You" https://whatdoesntkillyou.movie/

Documentaries can be a powerful way to raise awareness & understanding along with empathy.
After looking at some clips and reading this https://www.s4me.info/threads/what-doesnt-kill-you-forthcoming-documentary.45051/ , I'm hopeful this will be good.

@mecfs
#MyalgicEncephalomyelitis#ChronicFatigueSyndrome#MEcfs#CFS#PwME #SevereME

1/

Hopeful question for the #MECFS community:

In what ways can perimenopause (and menopause and beyond) impact pre-existing ME/CFS?

I’m looking for any info at all: your personal experiences, links to helpful websites or forums, or scientific studies. I’m open to anything.

ME-related websites seem to only have rather generic info about perimenopause/menopause. And I’ve only found scientific studies looking into how peri and gynae issues can mean someone is more likely to get ME/CFS for the first time at peri / meno age (which is not my question).

It’s getting easier to look up perimenopause info, thank goodness, but I want to know how it could impact pre-existing ME/CFS. For example, I’m wondering if it could be responsible for triggering the significant decline in my baseline and the fact I very much have all the criteria of POTS now. However, these things could also be due to a previous burnout or over exertion in recent years, too, not peri. I’m wanting to build a picture of what’s possible to try to understand my current and future experiences and help guide my future decisions.

#pwME @mecfs#POTS #myalgicencephalomyelitis #chronicfatiguesyndrome

Hopeful question for the #MECFS community:

In what ways can perimenopause (and menopause and beyond) impact pre-existing ME/CFS?

I’m looking for any info at all: your personal experiences, links to helpful websites or forums, or scientific studies. I’m open to anything.

ME-related websites seem to only have rather generic info about perimenopause/menopause. And I’ve only found scientific studies looking into how peri and gynae issues can mean someone is more likely to get ME/CFS for the first time at peri / meno age (which is not my question).

It’s getting easier to look up perimenopause info, thank goodness, but I want to know how it could impact pre-existing ME/CFS. For example, I’m wondering if it could be responsible for triggering the significant decline in my baseline and the fact I very much have all the criteria of POTS now. However, these things could also be due to a previous burnout or over exertion in recent years, too, not peri. I’m wanting to build a picture of what’s possible to try to understand my current and future experiences and help guide my future decisions.

#pwME @mecfs#POTS #myalgicencephalomyelitis #chronicfatiguesyndrome