I have been being led astray (read: sucking at self discipline) with too many late nights chatting after DnD this week.

It worsens the fatigue but moreso it worsens my chest pain and ability to breathe.

So today I am running an event at incredibly low capacity and I regret my life choices.

Past Lexi did not do good.

#LongCovid #ChronicIllness

Danke an @sonjalemke und andere, die bei der Demo vor dem Bundesforschungsministerium waren und mit den Eltern betroffener Kinder gesprochen haben. Eure Solidarität ist so wichtig! #MEcfs #LongCovid

Danke an @sonjalemke und andere, die bei der Demo vor dem Bundesforschungsministerium waren und mit den Eltern betroffener Kinder gesprochen haben. Eure Solidarität ist so wichtig! #MEcfs #LongCovid

Mistakes were made.

I was only at 7/10 pace points an hour ago so I figured oooh I can make strudel too.

No Lex, you are chronically ill, you can't just whip up a strudel.

3 pace points, one heart rate alarm and one strudel later....

#LongCovid #ChronicIllness

"Micro-Recovery: The Art of Resting Before You Crash" by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid who I have been impressed by

https://onelifelivedwell.substack.com/p/micro-recovery-the-art-of-resting

Gives 9 different short ways to relax the body

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#POTS @pots

"Micro-Recovery: The Art of Resting Before You Crash" by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid who I have been impressed by

https://onelifelivedwell.substack.com/p/micro-recovery-the-art-of-resting

Gives 9 different short ways to relax the body

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#POTS @pots

Heading to GP at 11 to try to start ball rolling with new GP about long COVID dx or tests or other dx or anything at all that might enable me to access health, know what I'm dealing with, and possibly deal with the symptom.

#ChronicIllness #LongCovid

· A large, electronic health records study published in JAMA Internal Medicine estimated that over 100,000 Americans died each year between 2022 and 2024 from #COVID19
· A new study published in Molecular & Cellular Proteomics found further evidence of abnormalities in post-exertional malaise #PEM
· A small phase two clinical trial is testing #Ketamine for #LongCOVID fatigue and cognitive function

https://thesicktimes.org/2026/01/13/research-updates-january-13/

#ResearchUpdates #TheSickTimes

· A large, electronic health records study published in JAMA Internal Medicine estimated that over 100,000 Americans died each year between 2022 and 2024 from #COVID19
· A new study published in Molecular & Cellular Proteomics found further evidence of abnormalities in post-exertional malaise #PEM
· A small phase two clinical trial is testing #Ketamine for #LongCOVID fatigue and cognitive function

https://thesicktimes.org/2026/01/13/research-updates-january-13/

#ResearchUpdates #TheSickTimes

Yeah, I'm pretty sure 123 is a normal heart rate when putting shopping away... /Sarcasm

#LongCovid #ChronicIllness

Question for the Long-Covid community:

How are you coping with the mental side of this sudden illness?
What small or big things help you get through the day—and give you something to look forward to tomorrow?

Thanks so much for sharing.

@longcovid@mstdn.social @longcovid@fedigroups.social
@mecfs

#LongCovid #PostCovid #NietHersteld #NichtGenesen #PAIS #disability #healthcare

Question for the Long-Covid community:

How are you coping with the mental side of this sudden illness?
What small or big things help you get through the day—and give you something to look forward to tomorrow?

Thanks so much for sharing.

@longcovid@mstdn.social @longcovid@fedigroups.social
@mecfs

#LongCovid #PostCovid #NietHersteld #NichtGenesen #PAIS #disability #healthcare

· 43% of Latino people reported symptoms of #LongCOVID in a new survey study published in Journal of General Internal Medicine
· A case series for Long COVID using a combination of Paxlovid, valacyclovir (Valtrex) and celecoxib (Celebrex), was recently published in Frontiers of Immunology
· A new phase II clinical trial for Long COVID was recently announced in the Netherlands

https://thesicktimes.org/2026/01/06/research-updates-january-6/

#ResearchUpdates #COVID

@joykill @babe oh trust me, I understand that already! #LongCovid!

It is occurring to me that alongside #LongCovid , I may also be in for round 2 of #AutisticBurnout which I never actually recovered from last time...

#ActuallyAutistic

· 43% of Latino people reported symptoms of #LongCOVID in a new survey study published in Journal of General Internal Medicine
· A case series for Long COVID using a combination of Paxlovid, valacyclovir (Valtrex) and celecoxib (Celebrex), was recently published in Frontiers of Immunology
· A new phase II clinical trial for Long COVID was recently announced in the Netherlands

https://thesicktimes.org/2026/01/06/research-updates-january-6/

#ResearchUpdates #COVID

Science for ME: News in Brief
29 Dec 2025 - 4 Jan 2026

This week's research articles, media items, advocacy and other news relating to #MECFS and #LongCovid
@mecfs

https://www.s4me.info/threads/news-in-brief-january-2026.48068/post-665128

Petition asking the city of Los Angeles to light up city hall for LC Awareness Day in March (Teal is our color!)

https://actionnetwork.org/petitions/petition-for-la-to-recognize-international-long-covid-awareness-day

Can email the LA city council too: cityclerk@lacity.org

#LongCovid #MECFS #ChronicIllness #PublicHealth #LightingDesign #LosAngeles

#COVID folks: do y'all know of any FFP3/N95 masks with replaceable filters I can buy? Preferably machine washable? Needs to be avail in the EU.

I love my 3M Auras, but I'm also sick of buying so many. #LongCOVID #COVIDIsNotOver #Masking #StillMasking #masks