Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 4 days ago
What Can We Learn Four Years On? A Multi-Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid — Cassie Lee et al. "The persistent clinical and socio‐economic burden of LC is clear, with only 20.8% of participants working at pre‐infection capacity. Policymakers and service leaders should act to close the gap between LC service provision and patient need. There is a critical window of opportunity for ICBs to redesign services in collaboration with and informed by the patients' voice"
What Can We Learn Four Years On? A Multi-Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid — Cassie Lee et al. "The persistent clinical and socio‐economic burden of LC is clear, with only 20.8% of participants working at pre‐infection capacity. Policymakers and service leaders should act to close the gap between LC service provision and patient need. There is a critical window of opportunity for ICBs to redesign services in collaboration with and informed by the patients' voice"
What Can We Learn Four Years On? A Multi-Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid — Cassie Lee et al. "The persistent clinical and socio‐economic burden of LC is clear, with only 20.8% of participants working at pre‐infection capacity. Policymakers and service leaders should act to close the gap between LC service provision and patient need. There is a critical window of opportunity for ICBs to redesign services in collaboration with and informed by the patients' voice"
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 4 days ago
What Can We Learn Four Years On? A Multi-Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid — Cassie Lee et al. "The persistent clinical and socio‐economic burden of LC is clear, with only 20.8% of participants working at pre‐infection capacity. Policymakers and service leaders should act to close the gap between LC service provision and patient need. There is a critical window of opportunity for ICBs to redesign services in collaboration with and informed by the patients' voice"
What Can We Learn Four Years On? A Multi-Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid — Cassie Lee et al. "The persistent clinical and socio‐economic burden of LC is clear, with only 20.8% of participants working at pre‐infection capacity. Policymakers and service leaders should act to close the gap between LC service provision and patient need. There is a critical window of opportunity for ICBs to redesign services in collaboration with and informed by the patients' voice"
What Can We Learn Four Years On? A Multi-Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid — Cassie Lee et al. "The persistent clinical and socio‐economic burden of LC is clear, with only 20.8% of participants working at pre‐infection capacity. Policymakers and service leaders should act to close the gap between LC service provision and patient need. There is a critical window of opportunity for ICBs to redesign services in collaboration with and informed by the patients' voice"
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp last week
News Release 6-Nov-2025 COVID-19 vaccination lowers long COVID risk in adolescents Peer-Reviewed Publication Columbia University Irving Medical Center FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Nov. 6, 2025--Adolescents who were vaccinated against COVID-19 were less likely to develop long COVID after their first SARS-CoV-2 infection than unvaccinated peers, finds a new study. The study, led by the NIH-funded RECOVER Initiative, is the first to examine the potential benefits of COVID vaccination in adolescents beyond lowering the severity of initial COVID symptoms. “These findings provide evidence that COVID vaccination has an important secondary effect in helping to mitigate the risk of long COVID in adolescents,” says Melissa Stockwell, a pediatrician at Columbia University Irving Medical Center and clinical senior author of the study.
News Release 6-Nov-2025 COVID-19 vaccination lowers long COVID risk in adolescents Peer-Reviewed Publication Columbia University Irving Medical Center FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Nov. 6, 2025--Adolescents who were vaccinated against COVID-19 were less likely to develop long COVID after their first SARS-CoV-2 infection than unvaccinated peers, finds a new study. The study, led by the NIH-funded RECOVER Initiative, is the first to examine the potential benefits of COVID vaccination in adolescents beyond lowering the severity of initial COVID symptoms. “These findings provide evidence that COVID vaccination has an important secondary effect in helping to mitigate the risk of long COVID in adolescents,” says Melissa Stockwell, a pediatrician at Columbia University Irving Medical Center and clinical senior author of the study.
News Release 6-Nov-2025 COVID-19 vaccination lowers long COVID risk in adolescents Peer-Reviewed Publication Columbia University Irving Medical Center FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Nov. 6, 2025--Adolescents who were vaccinated against COVID-19 were less likely to develop long COVID after their first SARS-CoV-2 infection than unvaccinated peers, finds a new study. The study, led by the NIH-funded RECOVER Initiative, is the first to examine the potential benefits of COVID vaccination in adolescents beyond lowering the severity of initial COVID symptoms. “These findings provide evidence that COVID vaccination has an important secondary effect in helping to mitigate the risk of long COVID in adolescents,” says Melissa Stockwell, a pediatrician at Columbia University Irving Medical Center and clinical senior author of the study.
Billy Smith and 1 other boosted
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 2 weeks ago
The Tyee This Physicist Says We Don't Take COVID Seriously Enough A thorough article with interview with MIT-researcher Yaneer Bar-Yam and a summary of the many harms Covid infections may cause and what preventative measures that should be taken . “The fight in the big pandemic public health story,” says Bar-Yam, “has moved from proving COVID is airborne to building a public health system that acts like it.”
The Tyee This Physicist Says We Don't Take COVID Seriously Enough A thorough article with interview with MIT-researcher Yaneer Bar-Yam and a summary of the many harms Covid infections may cause and what preventative measures that should be taken . “The fight in the big pandemic public health story,” says Bar-Yam, “has moved from proving COVID is airborne to building a public health system that acts like it.”
The Tyee This Physicist Says We Don't Take COVID Seriously Enough A thorough article with interview with MIT-researcher Yaneer Bar-Yam and a summary of the many harms Covid infections may cause and what preventative measures that should be taken . “The fight in the big pandemic public health story,” says Bar-Yam, “has moved from proving COVID is airborne to building a public health system that acts like it.”
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 2 weeks ago
The Tyee This Physicist Says We Don't Take COVID Seriously Enough A thorough article with interview with MIT-researcher Yaneer Bar-Yam and a summary of the many harms Covid infections may cause and what preventative measures that should be taken . “The fight in the big pandemic public health story,” says Bar-Yam, “has moved from proving COVID is airborne to building a public health system that acts like it.”
The Tyee This Physicist Says We Don't Take COVID Seriously Enough A thorough article with interview with MIT-researcher Yaneer Bar-Yam and a summary of the many harms Covid infections may cause and what preventative measures that should be taken . “The fight in the big pandemic public health story,” says Bar-Yam, “has moved from proving COVID is airborne to building a public health system that acts like it.”
The Tyee This Physicist Says We Don't Take COVID Seriously Enough A thorough article with interview with MIT-researcher Yaneer Bar-Yam and a summary of the many harms Covid infections may cause and what preventative measures that should be taken . “The fight in the big pandemic public health story,” says Bar-Yam, “has moved from proving COVID is airborne to building a public health system that acts like it.”
Chip Butty boosted
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 3 weeks ago
Hospital Guidance: Post-Exertional Malaise (PEM) - Care Requirements CLINICAL WARNING: When the patient is in PEM, any extra activity (sitting up, walking, answering questions) can worsen symptoms, reset recovery, and accelerate long-term decline. Strict protection of rest is required. Overnight Care Guidance Lighting and Noise: Keep the room dark and silent overnight. Avoid unnecessary door openings. Use minimal light if checks are required. Sleep Protection: Do not wake for routine observations unless clinically essential. Cluster any checks to reduce disturbance. Environment: Ensure call bell, water, and medications are within reach before settling for the night. Communication: Avoid questions or conversation if the patient wakes. Speak quietly and keep interactions minimal. Escalation: If pain, tachycardia, or instability occurs, respond calmly, minimise sensory exposure, and escalate as clinically indicated. Documentation: Overnight staff should record sleep protection strategies and PEM episode status at shift start and end. Personal Care - Showering and Hygiene Daily shower prompts are not required. Please be guided by the patient as to when capacity allows. General Principle: Patient will indicate readiness for washing or showering. No need to prompt daily. Frequency: Showering may be limited to once a week or less during severe PEM. Over-exertion can worsen symptoms. Alternatives: Patient may use wet wipes or gentle seated wash in lieu of shower as tolerated.
Hospital Guidance: Post-Exertional Malaise (PEM) - Care Requirements CLINICAL WARNING: When the patient is in PEM, any extra activity (sitting up, walking, answering questions) can worsen symptoms, reset recovery, and accelerate long-term decline. Strict protection of rest is required. Overnight Care Guidance Lighting and Noise: Keep the room dark and silent overnight. Avoid unnecessary door openings. Use minimal light if checks are required. Sleep Protection: Do not wake for routine observations unless clinically essential. Cluster any checks to reduce disturbance. Environment: Ensure call bell, water, and medications are within reach before settling for the night. Communication: Avoid questions or conversation if the patient wakes. Speak quietly and keep interactions minimal. Escalation: If pain, tachycardia, or instability occurs, respond calmly, minimise sensory exposure, and escalate as clinically indicated. Documentation: Overnight staff should record sleep protection strategies and PEM episode status at shift start and end. Personal Care - Showering and Hygiene Daily shower prompts are not required. Please be guided by the patient as to when capacity allows. General Principle: Patient will indicate readiness for washing or showering. No need to prompt daily. Frequency: Showering may be limited to once a week or less during severe PEM. Over-exertion can worsen symptoms. Alternatives: Patient may use wet wipes or gentle seated wash in lieu of shower as tolerated.
Hospital Guidance: Post-Exertional Malaise (PEM) - Care Requirements CLINICAL WARNING: When the patient is in PEM, any extra activity (sitting up, walking, answering questions) can worsen symptoms, reset recovery, and accelerate long-term decline. Strict protection of rest is required. Overnight Care Guidance Lighting and Noise: Keep the room dark and silent overnight. Avoid unnecessary door openings. Use minimal light if checks are required. Sleep Protection: Do not wake for routine observations unless clinically essential. Cluster any checks to reduce disturbance. Environment: Ensure call bell, water, and medications are within reach before settling for the night. Communication: Avoid questions or conversation if the patient wakes. Speak quietly and keep interactions minimal. Escalation: If pain, tachycardia, or instability occurs, respond calmly, minimise sensory exposure, and escalate as clinically indicated. Documentation: Overnight staff should record sleep protection strategies and PEM episode status at shift start and end. Personal Care - Showering and Hygiene Daily shower prompts are not required. Please be guided by the patient as to when capacity allows. General Principle: Patient will indicate readiness for washing or showering. No need to prompt daily. Frequency: Showering may be limited to once a week or less during severe PEM. Over-exertion can worsen symptoms. Alternatives: Patient may use wet wipes or gentle seated wash in lieu of shower as tolerated.
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 3 weeks ago
Hospital Guidance: Post-Exertional Malaise (PEM) - Care Requirements CLINICAL WARNING: When the patient is in PEM, any extra activity (sitting up, walking, answering questions) can worsen symptoms, reset recovery, and accelerate long-term decline. Strict protection of rest is required. Overnight Care Guidance Lighting and Noise: Keep the room dark and silent overnight. Avoid unnecessary door openings. Use minimal light if checks are required. Sleep Protection: Do not wake for routine observations unless clinically essential. Cluster any checks to reduce disturbance. Environment: Ensure call bell, water, and medications are within reach before settling for the night. Communication: Avoid questions or conversation if the patient wakes. Speak quietly and keep interactions minimal. Escalation: If pain, tachycardia, or instability occurs, respond calmly, minimise sensory exposure, and escalate as clinically indicated. Documentation: Overnight staff should record sleep protection strategies and PEM episode status at shift start and end. Personal Care - Showering and Hygiene Daily shower prompts are not required. Please be guided by the patient as to when capacity allows. General Principle: Patient will indicate readiness for washing or showering. No need to prompt daily. Frequency: Showering may be limited to once a week or less during severe PEM. Over-exertion can worsen symptoms. Alternatives: Patient may use wet wipes or gentle seated wash in lieu of shower as tolerated.
Hospital Guidance: Post-Exertional Malaise (PEM) - Care Requirements CLINICAL WARNING: When the patient is in PEM, any extra activity (sitting up, walking, answering questions) can worsen symptoms, reset recovery, and accelerate long-term decline. Strict protection of rest is required. Overnight Care Guidance Lighting and Noise: Keep the room dark and silent overnight. Avoid unnecessary door openings. Use minimal light if checks are required. Sleep Protection: Do not wake for routine observations unless clinically essential. Cluster any checks to reduce disturbance. Environment: Ensure call bell, water, and medications are within reach before settling for the night. Communication: Avoid questions or conversation if the patient wakes. Speak quietly and keep interactions minimal. Escalation: If pain, tachycardia, or instability occurs, respond calmly, minimise sensory exposure, and escalate as clinically indicated. Documentation: Overnight staff should record sleep protection strategies and PEM episode status at shift start and end. Personal Care - Showering and Hygiene Daily shower prompts are not required. Please be guided by the patient as to when capacity allows. General Principle: Patient will indicate readiness for washing or showering. No need to prompt daily. Frequency: Showering may be limited to once a week or less during severe PEM. Over-exertion can worsen symptoms. Alternatives: Patient may use wet wipes or gentle seated wash in lieu of shower as tolerated.
Hospital Guidance: Post-Exertional Malaise (PEM) - Care Requirements CLINICAL WARNING: When the patient is in PEM, any extra activity (sitting up, walking, answering questions) can worsen symptoms, reset recovery, and accelerate long-term decline. Strict protection of rest is required. Overnight Care Guidance Lighting and Noise: Keep the room dark and silent overnight. Avoid unnecessary door openings. Use minimal light if checks are required. Sleep Protection: Do not wake for routine observations unless clinically essential. Cluster any checks to reduce disturbance. Environment: Ensure call bell, water, and medications are within reach before settling for the night. Communication: Avoid questions or conversation if the patient wakes. Speak quietly and keep interactions minimal. Escalation: If pain, tachycardia, or instability occurs, respond calmly, minimise sensory exposure, and escalate as clinically indicated. Documentation: Overnight staff should record sleep protection strategies and PEM episode status at shift start and end. Personal Care - Showering and Hygiene Daily shower prompts are not required. Please be guided by the patient as to when capacity allows. General Principle: Patient will indicate readiness for washing or showering. No need to prompt daily. Frequency: Showering may be limited to once a week or less during severe PEM. Over-exertion can worsen symptoms. Alternatives: Patient may use wet wipes or gentle seated wash in lieu of shower as tolerated.
hypebot boosted
PaulaToThePeople
@PaulaToThePeople@climatejustice.social  ·  activity timestamp 3 weeks ago
PaulaToThePeople
@PaulaToThePeople@climatejustice.social  ·  activity timestamp 3 weeks ago
phildini boosted
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 2 months ago
Postural orthostatic tachycardia syndrome in post-COVID-19 long-hauler patients is associated with platelet storage pool deficiency — Gunning et al. "We have validated our previously reported data, which indicates that most POTS patients have a platelet delta granule storage pool deficiency. We do not propose that platelet dense granule deficiency is the etiology of POTS; however, it appears that the condition is somehow associated with POTS."
Postural orthostatic tachycardia syndrome in post-COVID-19 long-hauler patients is associated with platelet storage pool deficiency — Gunning et al. "We have validated our previously reported data, which indicates that most POTS patients have a platelet delta granule storage pool deficiency. We do not propose that platelet dense granule deficiency is the etiology of POTS; however, it appears that the condition is somehow associated with POTS."
Postural orthostatic tachycardia syndrome in post-COVID-19 long-hauler patients is associated with platelet storage pool deficiency — Gunning et al. "We have validated our previously reported data, which indicates that most POTS patients have a platelet delta granule storage pool deficiency. We do not propose that platelet dense granule deficiency is the etiology of POTS; however, it appears that the condition is somehow associated with POTS."
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 2 months ago
Postural orthostatic tachycardia syndrome in post-COVID-19 long-hauler patients is associated with platelet storage pool deficiency — Gunning et al. "We have validated our previously reported data, which indicates that most POTS patients have a platelet delta granule storage pool deficiency. We do not propose that platelet dense granule deficiency is the etiology of POTS; however, it appears that the condition is somehow associated with POTS."
Postural orthostatic tachycardia syndrome in post-COVID-19 long-hauler patients is associated with platelet storage pool deficiency — Gunning et al. "We have validated our previously reported data, which indicates that most POTS patients have a platelet delta granule storage pool deficiency. We do not propose that platelet dense granule deficiency is the etiology of POTS; however, it appears that the condition is somehow associated with POTS."
Postural orthostatic tachycardia syndrome in post-COVID-19 long-hauler patients is associated with platelet storage pool deficiency — Gunning et al. "We have validated our previously reported data, which indicates that most POTS patients have a platelet delta granule storage pool deficiency. We do not propose that platelet dense granule deficiency is the etiology of POTS; however, it appears that the condition is somehow associated with POTS."
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