Superbedankt aan iedereen die op het Malieveld staat, zit of ligt voor het PAIS-protest.
@longcovid@mstdn.social @longcovid@fedigroups.social
@mecfs
#LongCovid #PostCovid #MECSF #PAIS #PAISprotest #niethersteld #Activisme #RechtOpZorg
"How to Help With ME/CFS and Long COVID Disability Claims"
https://www.medscape.com/viewarticle/how-help-me-cfs-and-long-covid-disability-claims-2025a1000x2z
Lots of good tips to deal with insurance companies.
Government schemes can vary by country but people in most countries can probably pick up useful tips from this also.
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
Superbedankt aan iedereen die op het Malieveld staat, zit of ligt voor het PAIS-protest.
@longcovid@mstdn.social @longcovid@fedigroups.social
@mecfs
#LongCovid #PostCovid #MECSF #PAIS #PAISprotest #niethersteld #Activisme #RechtOpZorg
Een heel persoonlijke oproep voor het PAIS-Protest komende zondag, 30 nov:
https://www.doorbraak.eu/ik-ben-het-niet-waard-om-geholpen-te-worden-een-ervaringsbericht-en-een-oproep-voor-het-pais-protest/
@longcovid@mstdn.social @longcovid@fedigroups.social
@pots
@mecfs
#LongCovid #PostCovid #MECSF #PAIS #PAISprotest #niethersteld #Activisme #RechtOpZorg
Survey opportunity:
Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ)
English:
https://www.soscisurvey.de/V-PEM-AQ_english/
German:
https://www.soscisurvey.de/V-PEM-Q/
Questionnaire is estimated to take 20 minutes
Screenshot from latest Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19
"How to Help With ME/CFS and Long COVID Disability Claims"
https://www.medscape.com/viewarticle/how-help-me-cfs-and-long-covid-disability-claims-2025a1000x2z
Lots of good tips to deal with insurance companies.
Government schemes can vary by country but people in most countries can probably pick up useful tips from this also.
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
Een heel persoonlijke oproep voor het PAIS-Protest komende zondag, 30 nov:
https://www.doorbraak.eu/ik-ben-het-niet-waard-om-geholpen-te-worden-een-ervaringsbericht-en-een-oproep-voor-het-pais-protest/
@longcovid@mstdn.social @longcovid@fedigroups.social
@pots
@mecfs
#LongCovid #PostCovid #MECSF #PAIS #PAISprotest #niethersteld #Activisme #RechtOpZorg
Survey opportunity:
Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ)
English:
https://www.soscisurvey.de/V-PEM-AQ_english/
German:
https://www.soscisurvey.de/V-PEM-Q/
Questionnaire is estimated to take 20 minutes
Screenshot from latest Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19
Wat doe je op 30 nov?
Het PAIS protest! Ik doe mee- online.
PAIS (Post Acute Infectieuze Syndromen) - "Het is te verkrijgen door pure pech, bijvoorbeeld door Long Covid. Het aantal patiënten groeit stilletjes, stevig door. De samenleving kijkt - net zo stilletjes - de andere kant op.
Dit moet nu veranderen. Daarom komen we in actie!"
https://www.hetpaisprotest.nl/
@longcovid@mstdn.social @longcovid@fedigroups.social
@pots
@mecfs
#LongCovid #PostCovid #MECSF #PAIS #Activisme #RechtOpZorg #niethersteld
Wat doe je op 30 nov?
Het PAIS protest! Ik doe mee- online.
PAIS (Post Acute Infectieuze Syndromen) - "Het is te verkrijgen door pure pech, bijvoorbeeld door Long Covid. Het aantal patiënten groeit stilletjes, stevig door. De samenleving kijkt - net zo stilletjes - de andere kant op.
Dit moet nu veranderen. Daarom komen we in actie!"
https://www.hetpaisprotest.nl/
@longcovid@mstdn.social @longcovid@fedigroups.social
@pots
@mecfs
#LongCovid #PostCovid #MECSF #PAIS #Activisme #RechtOpZorg #niethersteld
Unions representing doctors and nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers.
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
Unions representing doctors and nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers.
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
"The persistent clinical and socio‐economic burden of LC [Long Covid] is clear, with only 20.8% of participants working at pre‐infection capacity.
https://onlinelibrary.wiley.com/doi/10.1111/hex.70435
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
"The persistent clinical and socio‐economic burden of LC [Long Covid] is clear, with only 20.8% of participants working at pre‐infection capacity.
https://onlinelibrary.wiley.com/doi/10.1111/hex.70435
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
US press release:
"the risk of developing long COVID was over 20% among unvaccinated youths and about 13% among those who were vaccinated"
https://www.eurekalert.org/news-releases/1104980
13% is still high
#LCKids #LongCovidKids #PASC
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
This Physicist Says We Don't Take COVID Seriously Enough
https://thetyee.ca/Analysis/2025/10/31/Physicist-COVID-Seriously-Enough/
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
This Physicist Says We Don't Take COVID Seriously Enough
https://thetyee.ca/Analysis/2025/10/31/Physicist-COVID-Seriously-Enough/
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
A patient who created a popular sheet on how to deal with somebody in postexertional malaise (PEM) has adapted it for hospital staff
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#PostExertionalMalaise #PEM
A patient who created a popular sheet on how to deal with somebody in postexertional malaise (PEM) has adapted it for hospital staff
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#PostExertionalMalaise #PEM