#Tag · bonfire.cafe

"Micro-Recovery: The Art of Resting Before You Crash" by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid who I have been impressed by

https://onelifelivedwell.substack.com/p/micro-recovery-the-art-of-resting

Gives 9 different short ways to relax the body

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#POTS @pots

Micro-Recovery: The Art of Resting Before You Crash

Tiny pauses that protect your system and remind your body it’s safe to rest.

Tom Kindlon

@tomkindlon@disabled.social · yesterday

"Micro-Recovery: The Art of Resting Before You Crash" by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid who I have been impressed by

https://onelifelivedwell.substack.com/p/micro-recovery-the-art-of-resting

Gives 9 different short ways to relax the body

Micro-Recovery: The Art of Resting Before You Crash

Tiny pauses that protect your system and remind your body it’s safe to rest.

Esther Payne :bisexual_flag: boosted

Tom Kindlon

@tomkindlon@disabled.social · last month

2/
From Australia:

Altered brain tissue microstructure and neurochemical profiles in long COVID and recovered COVID-19 individuals: A multimodal MRI study

https://www.sciencedirect.com/science/article/pii/S2666354625002005

Screenshot from Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

@novid #novid

Altered brain tissue microstructure and neurochemical profiles in long COVID and recovered COVID-19 individuals: A multimodal MRI study — Thapaliya et al.
"Our study identified altered signal intensity, abnormal tissue microstructure, and imbalanced neurochemicals in long COVID and COVID-19 recovered healthy controls. Importantly, we also found a significant association between T1w/T2w signal intensity and clinical measures, suggesting a potential link between myelin content and symptom severity." — Altered brain tissue microstructure and neurochemical profiles in long COVID and recovered COVID-19 individuals: A multimodal MRI study — Thapaliya et al. "Our study identified altered signal intensity, abnormal tissue microstructure, and imbalanced neurochemicals in long COVID and COVID-19 recovered healthy controls. Importantly, we also found a significant association between T1w/T2w signal intensity and clinical measures, suggesting a potential link between myelin content and symptom severity."

Tom Kindlon

@tomkindlon@disabled.social · last month

2/
From Australia:

Altered brain tissue microstructure and neurochemical profiles in long COVID and recovered COVID-19 individuals: A multimodal MRI study

https://www.sciencedirect.com/science/article/pii/S2666354625002005

Screenshot from Science for ME weekly update

@novid #novid

Billy Smith boosted

Tom Kindlon

@tomkindlon@disabled.social · 2 months ago

"How to Help With ME/CFS and Long COVID Disability Claims"

https://www.medscape.com/viewarticle/how-help-me-cfs-and-long-covid-disability-claims-2025a1000x2z

Lots of good tips to deal with insurance companies.

Government schemes can vary by country but people in most countries can probably pick up useful tips from this also.

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Tom Kindlon

@tomkindlon@disabled.social · 2 months ago

"How to Help With ME/CFS and Long COVID Disability Claims"

https://www.medscape.com/viewarticle/how-help-me-cfs-and-long-covid-disability-claims-2025a1000x2z

Lots of good tips to deal with insurance companies.

Government schemes can vary by country but people in most countries can probably pick up useful tips from this also.

Esther Payne :bisexual_flag: boosted

Tom Kindlon

@tomkindlon@disabled.social · 2 months ago

Unions representing doctors and nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers.

https://www.bma.org.uk/bma-media-centre/unconscionable-that-the-government-has-not-recognised-long-covid-as-an-occupational-disease-warns-bma-and-rcn

Screenshot from latest Science for ME weekly update

UK BMA and RCN ask Government to recognise Long COVID as an occupational disease
Unions representing Doctors and Nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers.
“The UK Government needs to act quickly and provide support now to the many doctors and nursing staff, and their families, who have suffered significant financial losses as a result of contracting COVID-19 in the workplace and then developing Long COVID.” — UK BMA and RCN ask Government to recognise Long COVID as an occupational disease Unions representing Doctors and Nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers. “The UK Government needs to act quickly and provide support now to the many doctors and nursing staff, and their families, who have suffered significant financial losses as a result of contracting COVID-19 in the workplace and then developing Long COVID.”

The British Medical Association is the trade union and professional body for doctors in the UK.

‘Unconscionable’ that the Government has not recognised Long COVID as an occupational disease, warns BMA and RCN - BMA media centre - BMA

Press release from the BMA.

Tom Kindlon

@tomkindlon@disabled.social · 2 months ago

Unions representing doctors and nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers.

https://www.bma.org.uk/bma-media-centre/unconscionable-that-the-government-has-not-recognised-long-covid-as-an-occupational-disease-warns-bma-and-rcn

Screenshot from latest Science for ME weekly update

The British Medical Association is the trade union and professional body for doctors in the UK.

‘Unconscionable’ that the Government has not recognised Long COVID as an occupational disease, warns BMA and RCN - BMA media centre - BMA

Press release from the BMA.

tools for commensality 🧿 boosted

Tom Kindlon

@tomkindlon@disabled.social · 2 months ago

"The persistent clinical and socio‐economic burden of LC [Long Covid] is clear, with only 20.8% of participants working at pre‐infection capacity.

https://onlinelibrary.wiley.com/doi/10.1111/hex.70435

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

@novid #novid

What Can We Learn Four Years On? A Multi-Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid — Cassie Lee et al.
"The persistent clinical and socio‐economic burden of LC is clear, with only 20.8% of participants working at pre‐infection capacity. Policymakers and service leaders should act to close the gap between LC service provision and patient need. There is a critical window of opportunity for ICBs to redesign services in collaboration with and informed by the patients' voice" — What Can We Learn Four Years On? A Multi-Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid — Cassie Lee et al. "The persistent clinical and socio‐economic burden of LC is clear, with only 20.8% of participants working at pre‐infection capacity. Policymakers and service leaders should act to close the gap between LC service provision and patient need. There is a critical window of opportunity for ICBs to redesign services in collaboration with and informed by the patients' voice"

Tom Kindlon

@tomkindlon@disabled.social · 2 months ago

"The persistent clinical and socio‐economic burden of LC [Long Covid] is clear, with only 20.8% of participants working at pre‐infection capacity.

https://onlinelibrary.wiley.com/doi/10.1111/hex.70435

Screenshot from latest Science for ME weekly update

@novid #novid

Tom Kindlon

@tomkindlon@disabled.social · 2 months ago

US press release:
"the risk of developing long COVID was over 20% among unvaccinated youths and about 13% among those who were vaccinated"
https://www.eurekalert.org/news-releases/1104980

13% is still high

#LCKids #LongCovidKids #PASC
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver