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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 17 hours ago

🧵
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"

https://substack.com/home/post/p-178293036

In a thoughtful blog post, the author tries to explain #PostExertionalMalaise and how people who suffer from it need to be very careful with which activities they take on.

He highlights how this symptom can lead a worsening of the condition which could be permanent.

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid
#LongCovid #PEM

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Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
Fred Rossi
Nov 07, 2025
The conversation always goes the same way. Someone asks if I want to join them for a meal, grab a drink, go to the movies, or some perfectly reasonable social activity that healthy people do without thinking. And when I hesitate, or decline, or try to explain why a Tuesday evening gathering might not work when I’m working Wednesday morning, I can see it in their faces and hear it in their voices: they think I’m making excuses.

I’m not making excuses. I’m doing accounting.

What PEM Actually Is (And Why “Tired” Doesn’t Cut It)

Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion. It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope.
Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise Fred Rossi Nov 07, 2025 The conversation always goes the same way. Someone asks if I want to join them for a meal, grab a drink, go to the movies, or some perfectly reasonable social activity that healthy people do without thinking. And when I hesitate, or decline, or try to explain why a Tuesday evening gathering might not work when I’m working Wednesday morning, I can see it in their faces and hear it in their voices: they think I’m making excuses. I’m not making excuses. I’m doing accounting. What PEM Actually Is (And Why “Tired” Doesn’t Cut It) Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion. It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope.
Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise Fred Rossi Nov 07, 2025 The conversation always goes the same way. Someone asks if I want to join them for a meal, grab a drink, go to the movies, or some perfectly reasonable social activity that healthy people do without thinking. And when I hesitate, or decline, or try to explain why a Tuesday evening gathering might not work when I’m working Wednesday morning, I can see it in their faces and hear it in their voices: they think I’m making excuses. I’m not making excuses. I’m doing accounting. What PEM Actually Is (And Why “Tired” Doesn’t Cut It) Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion. It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope.

Why I Can’t Just Meet You for Dinner

The Reality of Post-Exertional Malaise
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