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Ben boosted

Irene (she/they, Sir/Mr.)

@Irenetherogue@beige.party · 20 hours ago

Good thing happened to me today:

I got a diagnosis.

Its been 13+ years.
Ive been looking for these answers for 13+ years.

Today, i stop looking and start treatment.

Im not sad about the diagnosis
Im sad that it took 13+ years and being disbelieved, dismissed, belittled and gaslit by so many doctors across all of that time to get to this moment.

Its weird to be this relieved at receiving news that i have an incurable condition

If youre in the hell that is undiagnosed limbo, just know that your suffering is real and its not diagnosis that gives you validity. You deserve answers, and you shouldnt have to fight as hard as i did to get them. Love you 🩷

#undiagnosed #chronicillness #spoonie

Irene (she/they, Sir/Mr.)

@Irenetherogue@beige.party · 20 hours ago

Good thing happened to me today:

I got a diagnosis.

Its been 13+ years.
Ive been looking for these answers for 13+ years.

Today, i stop looking and start treatment.

Im not sad about the diagnosis
Im sad that it took 13+ years and being disbelieved, dismissed, belittled and gaslit by so many doctors across all of that time to get to this moment.

Its weird to be this relieved at receiving news that i have an incurable condition

If youre in the hell that is undiagnosed limbo, just know that your suffering is real and its not diagnosis that gives you validity. You deserve answers, and you shouldnt have to fight as hard as i did to get them. Love you 🩷

#undiagnosed #chronicillness #spoonie

Cress 🏴󠁧󠁢󠁷󠁬󠁳󠁿 🌻 boosted

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 2 weeks ago

#chronicillnessmemes #chronicillnesshumor #chronicillness #autoimmune #chronicallyill #spoonie #spoonielife #spooniememes

"You're overdoing it!"

ME: I'm chronically ill, I have no other type of "doing it" available. — "You're overdoing it!" ME: I'm chronically ill, I have no other type of "doing it" available.

dch :flantifa: :flan_hacker: boosted

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 2 weeks ago

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

guy holding up sign that says 'stop beating yourself up for not being able to accomplish things that your healthy body could'

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 2 weeks ago

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

guy holding up sign that says 'stop beating yourself up for not being able to accomplish things that your healthy body could'

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 2 weeks ago

#chronicillnessmemes #chronicillnesshumor #chronicillness #autoimmune #chronicallyill #spoonie #spoonielife #spooniememes

"You're overdoing it!"

ME: I'm chronically ill, I have no other type of "doing it" available. — "You're overdoing it!" ME: I'm chronically ill, I have no other type of "doing it" available.

Jess Mahler and 1 other boosted

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 3 weeks ago

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

@mmmyoursquid

People love to talk about whether or not disabled people can work

but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more)

Dead silence. Nobody cares. — @mmmyoursquid People love to talk about whether or not disabled people can work but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more) Dead silence. Nobody cares.

dch :flantifa: :flan_hacker: boosted

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 3 weeks ago

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

@lornamcfindy - anyone else do that thing where you just decide you're not going to be sick anymore and decree that you're just going to just Do The Things, but then you'll do something innocuous like put a wash on and nearly die in the process and remember you are actually quite sick?

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 3 weeks ago

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

@lornamcfindy - anyone else do that thing where you just decide you're not going to be sick anymore and decree that you're just going to just Do The Things, but then you'll do something innocuous like put a wash on and nearly die in the process and remember you are actually quite sick?

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 3 weeks ago

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

@mmmyoursquid

People love to talk about whether or not disabled people can work

but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more)

Dead silence. Nobody cares. — @mmmyoursquid People love to talk about whether or not disabled people can work but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more) Dead silence. Nobody cares.

Billy Smith boosted

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · last month

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

WHY IS IT so HARD TO LIVE WITH CHRONIC ILLNESS

If I'm resting I'm lazy

If go out and have fun I'm faking

If talk about my pain I'm overreacting

If saying nothing I'm lying

If I try and raise awareness I'm attention seeking

If I keep it to myself then I'm not being open and honest

@SPOONFULSOFCHRONIC — WHY IS IT so HARD TO LIVE WITH CHRONIC ILLNESS If I'm resting I'm lazy If go out and have fun I'm faking If talk about my pain I'm overreacting If saying nothing I'm lying If I try and raise awareness I'm attention seeking If I keep it to myself then I'm not being open and honest @SPOONFULSOFCHRONIC

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · last month

#chronicillnessmemes #chronicillnesshumor #chronicillness #autoimmune #chronicallyill #spoonie #spoonielife #spooniememes

"You're so chill"

Me: Thanks, I am too tired to react.

[pic of skeleton all glowing yellow in the wildnerness]

MyBodystryingTokillMe.com — "You're so chill" Me: Thanks, I am too tired to react. [pic of skeleton all glowing yellow in the wildnerness] MyBodystryingTokillMe.com

David Chisnall (*Now with 50% more sarcasm!*) and 1 other boosted

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · last month

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

keeponshouting - as a general rule, if you're seriously asking yourself "but what if I'm faking?" then odds are you're not faking.

priestessamy replies - I really really really really really needed this — keeponshouting - as a general rule, if you're seriously asking yourself "but what if I'm faking?" then odds are you're not faking. priestessamy replies - I really really really really really needed this

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · last month

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

WHY IS IT so HARD TO LIVE WITH CHRONIC ILLNESS

If I'm resting I'm lazy

If go out and have fun I'm faking

If talk about my pain I'm overreacting

If saying nothing I'm lying

If I try and raise awareness I'm attention seeking

If I keep it to myself then I'm not being open and honest

@SPOONFULSOFCHRONIC — WHY IS IT so HARD TO LIVE WITH CHRONIC ILLNESS If I'm resting I'm lazy If go out and have fun I'm faking If talk about my pain I'm overreacting If saying nothing I'm lying If I try and raise awareness I'm attention seeking If I keep it to myself then I'm not being open and honest @SPOONFULSOFCHRONIC

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · last month

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

keeponshouting - as a general rule, if you're seriously asking yourself "but what if I'm faking?" then odds are you're not faking.

priestessamy replies - I really really really really really needed this — keeponshouting - as a general rule, if you're seriously asking yourself "but what if I'm faking?" then odds are you're not faking. priestessamy replies - I really really really really really needed this

Djoerd Hiemstra 🍉 boosted

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · last month

#chronicillnessmemes #chronicillnesshumor #chronicillness #autoimmune #chronicallyill #spoonie #spoonielife #spooniememes
#funny #december #mentalhealthememes

josh.zilberberg - The fact that it's already December is proof that time actually also flies when you're not having fun

Anke boosted

@ContraindiKate@zeroes.ca · 2 months ago

Question for Disabled people/people with disabilities, Deaf, Mad and Sick people:

What things do you do on a regular basis to affirm your own realness to yourself?

To make clear to yourself that your body exists,
and by its very existence is worthy of existence,
and also of care, love, and resources?

To be an alive human in your own perception?
To reaffirm your personhood in your own mind?
To be fully inside softness and joy?

I’m not talking about the shit we have to go through to prove to others that we exist. I mean the things we do for ourselves, to make ourselves real for ourselves.

I would be grateful if you wanted to share any rituals, habits, interactions, methods of healing and care, creations, collections, shouts….

#Disability #DisabilityJustice #ChronicIllness #Spoonie

Jess Mahler boosted

Chronic Illness Humor Funny

@ChronicIllnessHumor@mastodon.social · 2 months ago

#chronicillness #chronicallyill #autoimmune #autoimmunedisorder #spoonie #spoonielife #chronicillnesslife

The best thing a therapist ever told me is "you're not lazy, you only have a certain amount of energy and right now you're using it all to survive". I know someone else needs to hear that too.'

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