#Tag · bonfire.cafe

Quixoticgeek boosted

Daniela Schreiter

For all the Spoonies out there 🦊.

#MastoArt #CuteArt #HappyArt #Spoonie

Comic illustration: A fox standing on their four paws, looking mischievous. They is carrying a knive in their snout, the text above them says: No Spoons left, only knives.

Bryan (he/him) 🇺🇸 🏳️‍🌈

@resplendent606@climatejustice.social · 2 weeks ago

phildini boosted

Tom Kindlon

@tomkindlon@disabled.social · 2 weeks ago

Some tips on showering and washing from a sympathetic & knowledgeable occupational therapist who specialises in ME/CFS, Long Covid & other energy-limiting chronic conditions

https://onelifelivedwell.substack.com/p/showers-shouldnt-cost-your-energy

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance #Spoonies #Spoonie

Showers Shouldn’t Cost Your Energy

You know, showers are deceptively hard.

Tom Kindlon

@tomkindlon@disabled.social · 2 weeks ago

Some tips on showering and washing from a sympathetic & knowledgeable occupational therapist who specialises in ME/CFS, Long Covid & other energy-limiting chronic conditions

https://onelifelivedwell.substack.com/p/showers-shouldnt-cost-your-energy

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance #Spoonies #Spoonie

Showers Shouldn’t Cost Your Energy

You know, showers are deceptively hard.

Alexis Bushnell boosted

Tom Kindlon

@tomkindlon@disabled.social · 2 weeks ago

“Disability at home”

“This website documents the ingenuity and creativity that caregivers & disabled people, including those with chronic illnesses, use every day to make home accessible.” (repeat)

https://www.disabilityathome.org/

#disability #chronicillness #disabilityaids #disabled #caring #caregiving #spoonie #spoonies

Tom Kindlon

@tomkindlon@disabled.social · 2 weeks ago

“Disability at home”

“This website documents the ingenuity and creativity that caregivers & disabled people, including those with chronic illnesses, use every day to make home accessible.” (repeat)

https://www.disabilityathome.org/

#disability #chronicillness #disabilityaids #disabled #caring #caregiving #spoonie #spoonies

hypebot boosted

:autism: Aurin needs💸:antifa:

@Aurin_the_classtraitor@climatejustice.social · 2 weeks ago

"My Life Is Fucked And I'm Out Of Spoons. What Do?"

I drafted a zine while still stuck in the old rundown house in the middle of nowhere, waiting for the eviction notice to arrive. It's about coping and doing whatever amount of thriving I can. It's a handwritten minzine made from a single A4 page.

I didn't yet get around to writing it cleanly, but here, have a messy draft!
(the rest of the pages in the 🧵)

#zine #MiniZine #MentalHealth #depression #coping #spoonie #disability #poverty #survive

3 media

Photo of the cover of a minizine entitled "My life is fucked and I'm out of spoons. What do?" It's written in sloppy handwriting in blue ballpoint pen on yellowish paper. In the upper right corner is a little box with a date: 12/2025

The first spread of pages, still written sloppily and with mistakes. It reads: "I'm trying to combat my own depression by focusing on "life" outside co-counseling sessions instead of ruminating abt. trauma and problems. Problem: I have no life!" This last sentence of page 1 is bigger than the rest.
Page 2: "Well. It feels that way. I'm broke and struggling for basic survival and I'm too disabled to move around much. Which really limits what I can do besides stew in misery or kill time (which feels like a waste!). I do [underlined] have lots to do... just 0 spoons!" The word spoons is cramped awkwardly into the corner of the page because it almost didn't fit. — The first spread of pages, still written sloppily and with mistakes. It reads: "I'm trying to combat my own depression by focusing on "life" outside co-counseling sessions instead of ruminating abt. trauma and problems. Problem: I have no life!" This last sentence of page 1 is bigger than the rest. Page 2: "Well. It feels that way. I'm broke and struggling for basic survival and I'm too disabled to move around much. Which really limits what I can do besides stew in misery or kill time (which feels like a waste!). I do [underlined] have lots to do... just 0 spoons!" The word spoons is cramped awkwardly into the corner of the page because it almost didn't fit.

Photo of the centre spread (pages 3 and 4) of the minizine, again handwritten. I used wooden clothespegs to hold it open while taking the picture. The text reads: " Step 1 [double underlined] Commit? ... commit. Yeah, ok. I hereby commit to try to live life to the fullest extent possible to me now. No need to compare to others or past/future me.
Step 2 [double underlined] Brainstorm ideas:
- knitting
- doodling [arrow] doodle a day minizines!
- making zines
- cooking, eating
- eating sweets + snacks
- look out the window
- read?
- make room/house as nice as" — Photo of the centre spread (pages 3 and 4) of the minizine, again handwritten. I used wooden clothespegs to hold it open while taking the picture. The text reads: " Step 1 [double underlined] Commit? ... commit. Yeah, ok. I hereby commit to try to live life to the fullest extent possible to me now. No need to compare to others or past/future me. Step 2 [double underlined] Brainstorm ideas: - knitting - doodling [arrow] doodle a day minizines! - making zines - cooking, eating - eating sweets + snacks - look out the window - read? - make room/house as nice as"

:autism: Aurin needs💸:antifa:

@Aurin_the_classtraitor@climatejustice.social · 2 weeks ago

"My Life Is Fucked And I'm Out Of Spoons. What Do?"

I didn't yet get around to writing it cleanly, but here, have a messy draft!
(the rest of the pages in the 🧵)

#zine #MiniZine #MentalHealth #depression #coping #spoonie #disability #poverty #survive

3 media

Not Ben boosted

Irene (she/they, Sir/Mr.)

@Irenetherogue@beige.party · 3 weeks ago

Good thing happened to me today:

I got a diagnosis.

Its been 13+ years.
Ive been looking for these answers for 13+ years.

Today, i stop looking and start treatment.

Im not sad about the diagnosis
Im sad that it took 13+ years and being disbelieved, dismissed, belittled and gaslit by so many doctors across all of that time to get to this moment.

Its weird to be this relieved at receiving news that i have an incurable condition

If youre in the hell that is undiagnosed limbo, just know that your suffering is real and its not diagnosis that gives you validity. You deserve answers, and you shouldnt have to fight as hard as i did to get them. Love you 🩷

#undiagnosed #chronicillness #spoonie

Irene (she/they, Sir/Mr.)

@Irenetherogue@beige.party · 3 weeks ago

Good thing happened to me today:

I got a diagnosis.

Its been 13+ years.
Ive been looking for these answers for 13+ years.

Today, i stop looking and start treatment.

Im not sad about the diagnosis
Im sad that it took 13+ years and being disbelieved, dismissed, belittled and gaslit by so many doctors across all of that time to get to this moment.

Its weird to be this relieved at receiving news that i have an incurable condition

#undiagnosed #chronicillness #spoonie