Perhaps the most frustrating thing about having a chronic energy limiting disability is other people's ignorance about chronic energy limiting disabilities.

Every time your self preserving actions, inability to do something, requests for accommodations, skeptical attitudes, or apathy towards my situation occur it diminishes my ability to do things. I'd absolutely be able to do more if everyone else either had a little compassion or would just fuck off alltogether.

#MEcfs #ME #MyalgicEncephalomyelitis #ChronicDisability #ChronicIllness

Perhaps the most frustrating thing about having a chronic energy limiting disability is other people's ignorance about chronic energy limiting disabilities.

Every time your self preserving actions, inability to do something, requests for accommodations, skeptical attitudes, or apathy towards my situation occur it diminishes my ability to do things. I'd absolutely be able to do more if everyone else either had a little compassion or would just fuck off alltogether.

#MEcfs #ME #MyalgicEncephalomyelitis #ChronicDisability #ChronicIllness

I quit coding years ago. AI brought me back

https://calquio.com

#HackerNews #I #quit #coding #years #ago. #AI #brought #me #back #AI #coding #careerchange #technology #HackerNews

The thing that brought me joy

https://www.stephenlewis.me/blog/the-thing-that-brought-me-joy/

#HackerNews #The #thing #that #brought #me #joy #joy #happiness #inspiration #personal-growth

Brands upset Buy For Me is featuring their products on Amazon without permission

https://www.modernretail.co/technology/brands-are-upset-that-buy-for-me-is-featuring-their-products-on-amazon-without-permission/

#HackerNews #Brands #Upset #Buy #For #Me #Amazon #Unauthorized #Products #Products #Rights

OLED Not for Me

https://nuxx.net/blog/2026/01/09/oled-not-for-me/

#HackerNews #OLED #Not #for #Me #technology #personal #preference #display #discussion

New Year, New Me

One of the big changes I made at the end of 2025 was shaving off my moustache. I’ve had a moustache since mid-2020; I talked about my reasons for growing one in my post called My Moustache. I think it looked really good, and it made me feel connected to my Middle Eastern heritage — both Greek and Arab. It was a pretty prominent feature and people would compliment me on the street for it.

But after 5 years, I was starting to feel overshadowed by the moustache. I think I was leaning too hard on it as part of my personality. When I talked about changing it up, my wife and kids would get upset — like I wouldn’t be the same person without it. It felt a little uncomfortable.

So, I decided to take the opportunity of the New Year to learn who I am without a handlebar moustache. I’m going to try living without a moustache for the whole of 2026; we’ll see how far I get. I am enjoying the freedom of being able to eat and drink much more neatly, and my bare lip does not require the same amount of care and grooming as it used to.

Thanks to all the nice people who have complimented my new look. To those who regret the loss of my distinguishing characteristic: I get it! It’s a little jarring to see this bare face without its central feature. I feel a little like a Mr. Potatohead with a missing accessory.

Anyway, that’s where it went, and why.

#face #me #moustache #personal

New Year, New Me

One of the big changes I made at the end of 2025 was shaving off my moustache. I’ve had a moustache since mid-2020; I talked about my reasons for growing one in my post called My Moustache. I think it looked really good, and it made me feel connected to my Middle Eastern heritage — both Greek and Arab. It was a pretty prominent feature and people would compliment me on the street for it.

But after 5 years, I was starting to feel overshadowed by the moustache. I think I was leaning too hard on it as part of my personality. When I talked about changing it up, my wife and kids would get upset — like I wouldn’t be the same person without it. It felt a little uncomfortable.

So, I decided to take the opportunity of the New Year to learn who I am without a handlebar moustache. I’m going to try living without a moustache for the whole of 2026; we’ll see how far I get. I am enjoying the freedom of being able to eat and drink much more neatly, and my bare lip does not require the same amount of care and grooming as it used to.

Thanks to all the nice people who have complimented my new look. To those who regret the loss of my distinguishing characteristic: I get it! It’s a little jarring to see this bare face without its central feature. I feel a little like a Mr. Potatohead with a missing accessory.

Anyway, that’s where it went, and why.

#face #me #moustache #personal

Elevator selfie! 🤳
('ts been a while )

#selfie #me

I KNOW this is #revolutionary #tech, so I just created a #Peertube #Playlist on #TubeFree of Fireside Fedi #episodes !

https://tubefree.org/w/p/1TN6B2QX4bCMAwaKh53xoJ

#super #like #wow #like #totally #freak #me #out #I #mean #right #on #cuase #torros #sure #are #number #one

Some good news.

"In a major boost to research on long COVID and chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), the German government has announced that it will provide €500 million (US$582 million) in research funding to support a National Decade Against Post-Infectious Diseases from 2026 to 2036"

#LongCovid #ME #MECFS #Germany

Long-COVID research just got a big funding boost: will it find new treatments?
https://www.nature.com/articles/d41586-025-03904-w

Some good news.

"In a major boost to research on long COVID and chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), the German government has announced that it will provide €500 million (US$582 million) in research funding to support a National Decade Against Post-Infectious Diseases from 2026 to 2036"

#LongCovid #ME #MECFS #Germany

Long-COVID research just got a big funding boost: will it find new treatments?
https://www.nature.com/articles/d41586-025-03904-w

"Op goede dagen mogen zijn katten even naar binnen."

"Er zijn zoveel mensen uit de maatschappij verdwenen. En dat is kennelijk acceptabel."

‘We weten niet hoeveel het er zijn, maar wel dat ze met veel zijn en dat ze verstoken zijn van zorg’, zegt de Rotterdamse longarts Merel Hellemons over de allerziekste groep. "En dat vind ik heel erg."

#PAISProtest #LongCovid #ME #PAIS #MillionsMissing #Solidarity

https://www.volkskrant.nl/kijkverder/v/2025/postcovid-covid-corona-patienten~v2184703/

https://archive.ph/2025.11.29-043515/https://www.volkskrant.nl/kijkverder/v/2025/postcovid-covid-corona-patienten~v2184703/

"Op goede dagen mogen zijn katten even naar binnen."

"Er zijn zoveel mensen uit de maatschappij verdwenen. En dat is kennelijk acceptabel."

‘We weten niet hoeveel het er zijn, maar wel dat ze met veel zijn en dat ze verstoken zijn van zorg’, zegt de Rotterdamse longarts Merel Hellemons over de allerziekste groep. "En dat vind ik heel erg."

#PAISProtest #LongCovid #ME #PAIS #MillionsMissing #Solidarity

https://www.volkskrant.nl/kijkverder/v/2025/postcovid-covid-corona-patienten~v2184703/

https://archive.ph/2025.11.29-043515/https://www.volkskrant.nl/kijkverder/v/2025/postcovid-covid-corona-patienten~v2184703/

📰 Ongeregeldheden bij demonstraties tegen azc's in Houten en Uithoorn

https://nieuwsjunkies.nl/artikel/1kDO

🕚 22:51 | NOS Video
🔸 #Protest #ME #Demonstratie #AZC #Arrestatie

📰 Ongeregeldheden bij demonstraties tegen azc's in Houten en Uithoorn

https://nieuwsjunkies.nl/artikel/1kDO

🕚 22:51 | NOS Video
🔸 #Protest #ME #Demonstratie #AZC #Arrestatie

I must admit that I wasn't a pizza lover when I was a teenager. Maybe it was because I was eating the wrong pizza, or perhaps it was just that it became so precious to me during my university years.

​The same goes for coffee: I didn't drink it and then started when I was around 30. I'm still not an avid coffee drinker today, but I do appreciate it.
Time can change tastes and habits.

#Me

· An estimated 36% of people with a documented SARS-CoV-2 infection worldwide have experienced #LongCOVID, according to a new systematic review
· New funding will help advance a potential low-cost diagnostic test for myalgic encephalomyelitis ( #ME)
· The SPEAR study group has proposed a potential Long COVID clinical trial with the company’s next-generation monoclonal antibody, VYD2311

https://thesicktimes.org/2025/09/16/research-updates-september-16/

#COVID19 #ResearchUpdates

Israeli minister announces settlement plans 'to thwart Palestinian state' / Tom McArthur,
BBC News 14.08.2025

#MO#ME#MiddleEast #peace#PeaceNOW

https://www.bbc.com/news/articles/ckgdzxpkdd7o