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Mre. Dartigen [maker mode] boosted
Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 15 hours ago

🧵
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"

https://substack.com/home/post/p-178293036

In a thoughtful blog post, the author tries to explain #PostExertionalMalaise and how people who suffer from it need to be very careful with which activities they take on.

He highlights how this symptom can lead a worsening of the condition which could be permanent.

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid
#LongCovid #PEM

1/

Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
Fred Rossi
Nov 07, 2025
The conversation always goes the same way. Someone asks if I want to join them for a meal, grab a drink, go to the movies, or some perfectly reasonable social activity that healthy people do without thinking. And when I hesitate, or decline, or try to explain why a Tuesday evening gathering might not work when I’m working Wednesday morning, I can see it in their faces and hear it in their voices: they think I’m making excuses.

I’m not making excuses. I’m doing accounting.

What PEM Actually Is (And Why “Tired” Doesn’t Cut It)

Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion. It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope.
Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise Fred Rossi Nov 07, 2025 The conversation always goes the same way. Someone asks if I want to join them for a meal, grab a drink, go to the movies, or some perfectly reasonable social activity that healthy people do without thinking. And when I hesitate, or decline, or try to explain why a Tuesday evening gathering might not work when I’m working Wednesday morning, I can see it in their faces and hear it in their voices: they think I’m making excuses. I’m not making excuses. I’m doing accounting. What PEM Actually Is (And Why “Tired” Doesn’t Cut It) Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion. It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope.
Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise Fred Rossi Nov 07, 2025 The conversation always goes the same way. Someone asks if I want to join them for a meal, grab a drink, go to the movies, or some perfectly reasonable social activity that healthy people do without thinking. And when I hesitate, or decline, or try to explain why a Tuesday evening gathering might not work when I’m working Wednesday morning, I can see it in their faces and hear it in their voices: they think I’m making excuses. I’m not making excuses. I’m doing accounting. What PEM Actually Is (And Why “Tired” Doesn’t Cut It) Post-exertional malaise (PEM for those of us who live with it intimately) is not tiredness. It’s not even exhaustion. It’s a systemic crash that occurs after physical, cognitive, or emotional exertion that exceeds your body’s brutally reduced energy envelope.

Why I Can’t Just Meet You for Dinner

The Reality of Post-Exertional Malaise
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Alexis Bushnell boosted
Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp 4 days ago
Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp 4 days ago

Help get my friend a wheelchair please - any amount you can donate is hugely appreciated. As are shares so more people can see it.

https://gofund.me/fa7ef1edf .

#Wheelchair #Fundraiser #GoFundMe
https://gofund.me/fa7ef1edf

RE: https://toot.wales/@alexisbushnell/115944789429950257

Huge thank you to everyone who has donated so far, I can't believe we got to the first £1k in just a couple of days.

There is about 30 days left on the quote for the wheelchair so we are really hopeful that my friend will be able to place the order before that time runs out thanks to your help.

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d@nny disc@ mc²
d@nny disc@ mc²
@hipsterelectron@circumstances.run  ·  activity timestamp 54 seconds ago

@tryst i'm not on VPN is the thing

d@nny disc@ mc²
d@nny disc@ mc²
@hipsterelectron@circumstances.run replied  ·  activity timestamp 32 seconds ago

@tryst thank you very much

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David Chisnall (*Now with 50% more sarcasm!*)
David Chisnall (*Now with 50% more sarcasm!*)
@david_chisnall@infosec.exchange  ·  activity timestamp 2 hours ago

@kim_harding

5.5Gbps (550Mbps upload) and 8.5Gbps (850Mbps upload) tiers

Ugh. Downstream faster than my home network can handle, but upstream much slower. Please just give me 1Gb/s symmetric!

kim_harding ✅
kim_harding ✅
@kim_harding@mastodon.scot replied  ·  activity timestamp 33 seconds ago

@david_chisnall Yeah, I agree, I have only just upgraded my home LAN to 2.5Gb/s and there is no way I can afford to now upgrade to a 10Gb/s LAN

Added to which, the small business I support couldn't handle anything above 1Gb/s at the present.

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André Claaßen
André Claaßen
@andreclaassen@ruhr.social  ·  activity timestamp 43 minutes ago

@DonDahlmann @pallenberg Ich nutze KI nicht für Geburtstagsmotiven, sondern für meine Arbeit. Claude Cowork und Code haben meine Sicht auf Ki sehr verändert.

Sascha Pallenberg 🇹🇼 ♻️ ⚡
Sascha Pallenberg 🇹🇼 ♻️ ⚡
@pallenberg@mastodon.social replied  ·  activity timestamp 34 seconds ago

@andreclaassen bitte bitte nicht nur Ueberschriften lesen. Der @DonDahlmann und ich gehen intensivst auf das Thema ein. Das ist dann doch ne Ecke komplexer

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TheMaxiP4D 💽 Now in MiniDisc
TheMaxiP4D 💽 Now in MiniDisc
@TheMaxiP4D@mastodont.cat  ·  activity timestamp 22 minutes ago

Ara una mica de hate:
Odio els putos auriculars Beats.
Els odio. Són una merda i sonen a cul. De fet, crec que he fet pets que sonen millor.
I ja sé que no tothom necessita uns auriculars d'audiòfil, però, si et vols comprar uns auriculars mediocres per què vols pagar per ells el mateix que costen uns auriculars de debò?

spla
spla
@spla@mastodont.cat replied  ·  activity timestamp 39 seconds ago

@TheMaxiP4D tenia entés que Beats era una de les millors marques 🤔

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Alexis Bushnell boosted
Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp 2 days ago

Btw I know we're full of creatives here; are any of you both digital caricaturists and also Welsh speakers?

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d@nny disc@ mc²
d@nny disc@ mc²
@hipsterelectron@circumstances.run  ·  activity timestamp 1 minute ago

@tryst oh hm. that's fine

d@nny disc@ mc²
d@nny disc@ mc²
@hipsterelectron@circumstances.run replied  ·  activity timestamp 54 seconds ago

@tryst i'm not on VPN is the thing

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Sascha Pallenberg 🇹🇼 ♻️ ⚡ boosted
DonDahlmann
DonDahlmann
@DonDahlmann@mastodon.social  ·  activity timestamp 45 minutes ago

KI sollte alles verändern – doch was ist davon 2026 wirklich übrig? Benötigen wir Rechenzentren für 500 Milliarden, um ein paar Geburtstagsmotive erstellen zu lassen? @pallenberg und ich mit einer kritischen Bestandsaufnahme.
https://techlounge.transistor.fm/episodes/techlounge-die-achillesferse-der-ki-giganten

Techlounge Podcast

Techlounge Podcast | Techlounge: Die Achillesferse der KI-Giganten

KI sollte alles verändern – doch was ist davon 2026 wirklich übrig? In dieser Folge der TechLounge sprechen Sascha Pallenberg und Don Dahlmann über die Diskrepanz zwischen KI-Versprechen und Realit...
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Chaotic Unicorn
Chaotic Unicorn
@alter_unicorn@masto.bike  ·  activity timestamp 2 minutes ago

Hola fediverso,

Tu as des examples de réseaux/protocoles décentralisés, autres que ActivityPub et les mails?

merci!

Marc
Marc
@corpsmoderne@mamot.fr replied  ·  activity timestamp 1 minute ago

@alter_unicorn XMPP ?

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trystimuli
trystimuli
@tryst@fedi.imu.li  ·  activity timestamp 1 hour ago

@hipsterelectron it loads just fine for me? they probably don’t like your vpn again?

d@nny disc@ mc²
d@nny disc@ mc²
@hipsterelectron@circumstances.run replied  ·  activity timestamp 1 minute ago

@tryst oh hm. that's fine

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Mre. Dartigen [maker mode] boosted
Christine Lemmer-Webber
Christine Lemmer-Webber
@cwebber@social.coop  ·  activity timestamp 11 hours ago

This blogpost makes an astoundingly good case about LLMs I hadn't considered before. The collapse of public forums (like Stack Overflow) for programming answers coincides directly with the rise of programmers asking for answers from chatbots *directly*. Those debugging sessions become part of a training set that now *only private LLM corporations have access to*. This is something that "open models" seemingly can't easily fight. https://michiel.buddingh.eu/enclosure-feedback-loop

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André Claaßen
André Claaßen
@andreclaassen@ruhr.social  ·  activity timestamp 34 minutes ago

@DonDahlmann @pallenberg Ich habe eine andere Erfahrung. Für mich übernehmen Agenten mehr und mehr Arbeit. KI ist nicht intelligent, aber sehr hilfreich. Kosten für Wissensarbeit werden dramatisch sinken. Meine Sicht und Erfahrung.

Sascha Pallenberg 🇹🇼 ♻️ ⚡
Sascha Pallenberg 🇹🇼 ♻️ ⚡
@pallenberg@mastodon.social replied  ·  activity timestamp 2 minutes ago

@andreclaassen hast du da mal ein paar Beispiele fuer, die auch in der breiten Masse angekommen und nutzbar sind? @DonDahlmann

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Fishercat
Fishercat
@Fishercat@kolektiva.social  ·  activity timestamp 29 minutes ago

@TheBreadmonkey A hundred years ago, I was exploring Buddhism, and came across something I still use when things are bad for me (and I remember). "Suffering comes from focusing on the past or the future; live here, now."

Things are pretty shit right now. I'm sorry you're feeling it so deeply at the moment.

Ben
Ben
@TheBreadmonkey@beige.party replied  ·  activity timestamp 2 minutes ago

@Fishercat

❤️

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Cat 🐈🥗 (D.Burch) :paw:⁠:paw: boosted
Steve James
Steve James
@ste@noc.social  ·  activity timestamp 8 minutes ago

Masto admin trying to get rid of a @catsalad account

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Claudius Link
Claudius Link
@realn2s@infosec.exchange  ·  activity timestamp 6 hours ago

@hiker @Colognerin @sardegna

Dazu hat @Mer_edith@mastodon.world einen guten Thread.
https://mastodon.world/@Mer
_edith/115445701583902092

(Edit: da der doppelte Unterstrich eventuell Probleme bereitet hier noch Mal der Link über einen URL shortener https://www.urlvanish.com/92836b55)

Das Problem ist, dass die oben genannten Firmen sich so tief in die Internetinfrastruktur involviert haben, dass du ohne sie zu nutzen keinen weltweite verteilen performanten Dienst für eine große Nutzerzahl aufbauen oder betreiben kannst (das betrifft im speziellen Audio und Video calls)

Du müsstest an vielen Stellen der Welt Server in der digitalen Nähe der dortigen Internet Backbone Knoten betreiben. Das ist für die meisten Firmen einfach nicht leistbar.

Und wenn du das nicht in eigenen Rechenzentren gut eigenen Personal machst, ist das Problem nur verschoben. Die Architektur und Funktionsweise muss die Sicherheit gewährleisten. Und in der Hinsicht traue ich Signal mehr als den mit bekannten Alternativen.
(Wäre natürlich trotzdem schön, den oben genannten Firmen kein Geld in den Rachen zu werfen)

Colognerin | Stop AFD
Colognerin | Stop AFD
@Colognerin@nrw.social replied  ·  activity timestamp 2 minutes ago

@realn2s @hiker @sardegna

"Keine realistische Alternative": Signal-Chefin verteidigt Nutzung von AWS - heise.de

Als AWS vor einer Woche ausgefallen ist, hatte Signal eine Weile massive Probleme. Meredith Whittaker erklärt nun, warum der Messenger darauf angewiesen ist.

28.10.2025
Von Martin Holland

https://www.heise.de/news/Keine-realistische-Alternative-Signal-Chefin-verteidigt-Nutzung-von-AWS-10961198.html

heise online

"Keine realistische Alternative": Signal-Chefin verteidigt Nutzung von AWS

Als AWS vor einer Woche ausgefallen ist, hatte Signal eine Weile massive Probleme. Meredith Whittaker erklärt nun, warum der Messenger darauf angewiesen ist.
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Chaotic Unicorn
Chaotic Unicorn
@alter_unicorn@masto.bike  ·  activity timestamp 2 minutes ago

Hola fediverso,

Tu as des examples de réseaux/protocoles décentralisés, autres que ActivityPub et les mails?

merci!

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Claudius Link boosted
Design Thinking! Comic
Design Thinking! Comic
@designthinkingcomic@mastodon.cloud  ·  activity timestamp 2 hours ago

Dear Palantir employees, this one’s for you…

8 panel comic strip showing a designer being onboarded into a very Evil Corporation, and shown around all the perks which are extremely ethically messed up. He worries that he hasn’t made the right choice, but in the last panel is seen with a pair of horns and bat wings attached to him in a speedboat with the world burning in the background thinking to himself ‘totally the right choice.’
8 panel comic strip showing a designer being onboarded into a very Evil Corporation, and shown around all the perks which are extremely ethically messed up. He worries that he hasn’t made the right choice, but in the last panel is seen with a pair of horns and bat wings attached to him in a speedboat with the world burning in the background thinking to himself ‘totally the right choice.’
8 panel comic strip showing a designer being onboarded into a very Evil Corporation, and shown around all the perks which are extremely ethically messed up. He worries that he hasn’t made the right choice, but in the last panel is seen with a pair of horns and bat wings attached to him in a speedboat with the world burning in the background thinking to himself ‘totally the right choice.’
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Elena Rossini ⁂
Elena Rossini ⁂
@_elena@mastodon.social  ·  activity timestamp 4 hours ago

Whenever I ask for technical assistance on the Fediverse, I get multiple offers of help within a minute.

Solutions in under 5 minutes.

There's nothing quite like it.

I'm just so grateful for you all ❤️

Dorien
Dorien
@tunneltoast@mastodon.social replied  ·  activity timestamp 2 minutes ago

@_elena Meanwhile I heard a story yesterday that this elderly woman can't even cancel a subscription that your partner bought for facebook before he passed away... All she gets when she calls the support is bots bots bots ... Meta is trash

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Randahl Fink
Randahl Fink
@randahl@mastodon.social  ·  activity timestamp 42 minutes ago

Trump has not posted on Truth Social for 11 hours.

Why? Because when his invasion threats do not work, when his tariff threats do not work, and when his oppressive occupation of Minneapolis does not work, he cannot dominate.

Reject him — because THAT works!

Jean Luc am Grimmsten
Jean Luc am Grimmsten
@datenhalde@nrw.social replied  ·  activity timestamp 2 minutes ago

@randahl
Trump has not posted on Truth Social for 11 hours.

Why?

constipation

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