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Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp 2 weeks ago

Today I am playing the "am I struggling to focus and feeling fucking awful because of pain or fatigue" game.

I think it's just fatigue but I suck at recognising pain so who knows...

The skin sensitivity is really bad though.

#LongCovid (or maybe #Fibromyalgia )

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McKenzie
McKenzie
@careclinic@mastodon.social  ·  activity timestamp 2 weeks ago

The pain vs fatigue guessing game is so real. I had the same struggle until I started logging what I was feeling daily. Over time I noticed my fatigue had a different pattern from the pain days, and the skin sensitivity was usually a sign a bigger flare was coming. CareClinic helped me track all of it in one place without overthinking it.

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vulgalour - Free Range Queer
vulgalour - Free Range Queer
@vulgalour@birdbutt.com  ·  activity timestamp 2 weeks ago

@alexisbushnell Do you keep any kind of symptom diary? It might help you understand correlations that are unique to you.

Since Long Covid and ME/CFS stuff is so similar, physical heaviness for me (ME/CFS) means I need to lie down and rest in a low stimulus environment for an hour or so.

Every body has its own language, and pain doesn't always tell us much (I have constant pain, it's useless info at this point), so we need to understand the other info coming in to work with it.

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Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp 2 weeks ago

@vulgalour yeah, I use Visible and track symptoms on there. My GP has a bunch of blood tests and list of my symptoms and stuff but no diagnosis yet.
I'm still learning what means what and stuff, and keep getting thrown curve balls atm too with new symptoms and issues and what have you.

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vulgalour - Free Range Queer
vulgalour - Free Range Queer
@vulgalour@birdbutt.com  ·  activity timestamp 2 weeks ago

@alexisbushnell Rooting for you to find an easier path through all this and hoping you'll be as kind to yourself as you've been to others.

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Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp 2 weeks ago

Have knocked back some top up painkillers but it seems the issue is whatever the thing is that makes it next to impossible for me to hold myself upright. My body is just too heavy for my body...

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Alexis Bushnell
Alexis Bushnell
@alexisbushnell@toot.wales  ·  activity timestamp 2 weeks ago

Oh man today had been a bad health day. And frankly a pretty bad all round day.

Tomorrow should be better though because much of it will be spent with a beautiful woman.

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consumableJoy
consumableJoy
@consumablejoy@wandering.shop  ·  activity timestamp 2 weeks ago

@alexisbushnell Sending hugs or whatever your preferred comfort behavior is

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Kevin Davy
Kevin Davy
@pathfinder@beige.party  ·  activity timestamp 2 weeks ago

@alexisbushnell
bear_hugs

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CynAq🤘
CynAq🤘
@CynAq@beige.party  ·  activity timestamp 2 weeks ago

@alexisbushnell neomouse_hug_blahaj

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