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Jess Mahler
Jess Mahler boosted
Quercus 🟡⚪🟣⚫
@coppercrush@beige.party  ·  activity timestamp last month
#ADHD ers: please help with an open-ended question regarding medication. Looking for advice based on people's own personal experience, not 'studies have shown'. I would love for a few people to share their personal experience of being on a stimulant for the first time, especially as an adult. For some reason I'm really nervous about taking it for the first time, I think because I have so many other chronic health issues, particularly chronic pain, and I'm really really really hoping this helps me. All of my other health problems have resisted treatment for 15 years so I have a lot of trepidation around having tried dozens and dozens of ineffective treatments.

I don't know exactly what my question is, besides 'what should I expect?' A big part of my problem is that I always attributed my functional difficulties to how poorly I felt, but I'm feeling a little hopeful that maybe the reverse might be true, that my difficulty functioning has caused me extreme stress that has led to my feeling so poorly. Has anyone had a similar experience? I would love to hear about (hopefully success, but be honest) stories of how treating ADHD with medication has intersected with other health conditions. Do you have any advice about navigating these early stages, particularly dealing with side-effects, navigating with practictioners, sleep interactions, and finding the right medication/ dose?

I'm looking for advice based on personal experience, not on 'studies have shown'. Thank you!

#disability#chronicPain#AskFedi #AuDHD#ActuallyAutistic#Boost4Reach #fibromyalgia

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Quercus 🟡⚪🟣⚫
@coppercrush@beige.party  ·  activity timestamp last month
#ADHD ers: please help with an open-ended question regarding medication. Looking for advice based on people's own personal experience, not 'studies have shown'. I would love for a few people to share their personal experience of being on a stimulant for the first time, especially as an adult. For some reason I'm really nervous about taking it for the first time, I think because I have so many other chronic health issues, particularly chronic pain, and I'm really really really hoping this helps me. All of my other health problems have resisted treatment for 15 years so I have a lot of trepidation around having tried dozens and dozens of ineffective treatments.

I don't know exactly what my question is, besides 'what should I expect?' A big part of my problem is that I always attributed my functional difficulties to how poorly I felt, but I'm feeling a little hopeful that maybe the reverse might be true, that my difficulty functioning has caused me extreme stress that has led to my feeling so poorly. Has anyone had a similar experience? I would love to hear about (hopefully success, but be honest) stories of how treating ADHD with medication has intersected with other health conditions. Do you have any advice about navigating these early stages, particularly dealing with side-effects, navigating with practictioners, sleep interactions, and finding the right medication/ dose?

I'm looking for advice based on personal experience, not on 'studies have shown'. Thank you!

#disability#chronicPain#AskFedi #AuDHD#ActuallyAutistic#Boost4Reach #fibromyalgia

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Michael Bacon
Michael Bacon boosted
Hollie
@hollie@social.coop  ·  activity timestamp 3 months ago

Folks with chronic health issues, I can't stress enough how much a good sun hoodie has helped me with handling summer

They're marketed toward outdoor athletes, and most of us with chronic illness are pretty outside that circle so you may have missed their awesomeness!

Here's a good video on comparisons between hoodies. I have two, one REI brand that seems to work well, and a Taema from Arcteryx that works a bit better.

(1/2)

#ChronicIllness#Fibromyalgia#MECFS

https://www.youtube.com/watch?v=z8cOuEifT9c

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Hollie
@hollie@social.coop  ·  activity timestamp 3 months ago

Folks with chronic health issues, I can't stress enough how much a good sun hoodie has helped me with handling summer

They're marketed toward outdoor athletes, and most of us with chronic illness are pretty outside that circle so you may have missed their awesomeness!

Here's a good video on comparisons between hoodies. I have two, one REI brand that seems to work well, and a Taema from Arcteryx that works a bit better.

(1/2)

#ChronicIllness#Fibromyalgia#MECFS

https://www.youtube.com/watch?v=z8cOuEifT9c

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Nemoudeis
Nemoudeis boosted
Chronic Illness Humor Funny
@ChronicIllnessHumor@mastodon.social  ·  activity timestamp 3 months ago
#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes #fibromyalgia #spoonie #chronicillnesslife
#funny #haha #memes #humor
@notnotscotty on twitter

what if there is no placebo effect and sugar is just really healthy in pill form
@notnotscotty on twitter what if there is no placebo effect and sugar is just really healthy in pill form
@notnotscotty on twitter what if there is no placebo effect and sugar is just really healthy in pill form
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Chronic Illness Humor Funny
@ChronicIllnessHumor@mastodon.social  ·  activity timestamp 3 months ago
#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes #fibromyalgia #spoonie #chronicillnesslife
#funny #haha #memes #humor
@notnotscotty on twitter

what if there is no placebo effect and sugar is just really healthy in pill form
@notnotscotty on twitter what if there is no placebo effect and sugar is just really healthy in pill form
@notnotscotty on twitter what if there is no placebo effect and sugar is just really healthy in pill form
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Chronic Illness Humor Funny
@ChronicIllnessHumor@mastodon.social  ·  activity timestamp 4 months ago
#chronicillness #autoimmune #chronicallyill #chronicillnesshumor #chronicillnessmemes #autoimmunememes #fibromemes #fibromyalgia #spoonie
listen to your body it can tell you a lot about yourself

My body:

[a silhouette of a guy and inside him it says fuck you.]
listen to your body it can tell you a lot about yourself My body: [a silhouette of a guy and inside him it says fuck you.]
listen to your body it can tell you a lot about yourself My body: [a silhouette of a guy and inside him it says fuck you.]
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Nat Oleander
@nat@partyon.xyz  ·  activity timestamp 5 months ago

30% of the way!! Please keep boosting... I am so excited to be able to take Assata to their swim lessons this summer, keep finding free & discounted baby items around town, & have some delightful outdoor social adventures while the weather is warm ☀️

2110/7000

https://chuffed.org/project/replace-our-car

#activist #activism #summer #spring #outdoors #swim #social #covid#CovidIsNotOver #gifteconomy #nature #economy #helpfolkslive2025 #queermutualaid #mutualaid #transmutualaid #mutualaidrequest

Sorry, no caption provided by author
Sorry, no caption provided by author
Sorry, no caption provided by author
Nat Oleander
@nat@partyon.xyz replied  ·  activity timestamp 4 months ago

It's been a hell of a time with all the ups and downs of bringing this life into the world—but there is so much beauty and joy in parenting our little one! I am grateful to everyone who's supported us, and so grateful that I'm continually practicing asking for more help.

2110/7000

https://chuffed.org/project/replace-our-car

#disabled #disabledmutualaid #economy #helpfolkslive2025 #queermutualaid #mutualaid #transmutualaid #mutualaidrequest #chronicillness #fibromyalgia #babies

Image: sepia-toned photograph featuring a baby wearing a knitted hat with ears, sitting between two laps. One parent's face is slightly visible. The baby has one hand in their mouth and their eyes are cast downward.

Text: I hope you are having a beautiful, adventurous day—and that you remember the hardest part of life's challenges is not the challenge itself, it's facing them alone.
Image: sepia-toned photograph featuring a baby wearing a knitted hat with ears, sitting between two laps. One parent's face is slightly visible. The baby has one hand in their mouth and their eyes are cast downward. Text: I hope you are having a beautiful, adventurous day—and that you remember the hardest part of life's challenges is not the challenge itself, it's facing them alone.
Image: sepia-toned photograph featuring a baby wearing a knitted hat with ears, sitting between two laps. One parent's face is slightly visible. The baby has one hand in their mouth and their eyes are cast downward. Text: I hope you are having a beautiful, adventurous day—and that you remember the hardest part of life's challenges is not the challenge itself, it's facing them alone.
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