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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 3 days ago

"Pacing in the Real World"

Another blogpost I liked a lot by this OT who specialises in ME/CFS & long Covid.

Contains lots of practical tips. As she says, an emphasis is harm reduction rather than perfection

https://onelifelivedwell.substack.com/p/pacing-in-the-real-world

#MEcfs #LongCovid #CFS #PwME #Pacing #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid

Another blogpost I liked a lot by this OT who specialises in ME/CFS and long Covid.
Contains lots of practical tips. As she says, an emphasis is harm reduction rather than perfection
"Pacing in the Real World"
https://onelifelivedwell.substack.com/.../pacing-in-the...
Headings:
1: Let’s start here: perfection is a myth (and honestly, a little rude).
2: Triage, a tool for days when everything feels urgent
3: Micro-recoveries (a tiny rebellion).
4: Positions matter more than you think
5: Help looks different when you don’t have a village.
6: Cognitive load counts too.
7: Lower the bar (I know, I know).
#MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Pacing in the Real World

Where stopping isn't always an option.

Abby
Nov 10, 2025

Sometimes pacing can feel like a luxury for people who have margins, people who have extra hands, extra hours, extra anything. What do you do when the world still expects you to operate like nothing has changed, even when your body has?
Another blogpost I liked a lot by this OT who specialises in ME/CFS and long Covid. Contains lots of practical tips. As she says, an emphasis is harm reduction rather than perfection "Pacing in the Real World" https://onelifelivedwell.substack.com/.../pacing-in-the... Headings: 1: Let’s start here: perfection is a myth (and honestly, a little rude). 2: Triage, a tool for days when everything feels urgent 3: Micro-recoveries (a tiny rebellion). 4: Positions matter more than you think 5: Help looks different when you don’t have a village. 6: Cognitive load counts too. 7: Lower the bar (I know, I know). #MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome Pacing in the Real World Where stopping isn't always an option. Abby Nov 10, 2025 Sometimes pacing can feel like a luxury for people who have margins, people who have extra hands, extra hours, extra anything. What do you do when the world still expects you to operate like nothing has changed, even when your body has?
Another blogpost I liked a lot by this OT who specialises in ME/CFS and long Covid. Contains lots of practical tips. As she says, an emphasis is harm reduction rather than perfection "Pacing in the Real World" https://onelifelivedwell.substack.com/.../pacing-in-the... Headings: 1: Let’s start here: perfection is a myth (and honestly, a little rude). 2: Triage, a tool for days when everything feels urgent 3: Micro-recoveries (a tiny rebellion). 4: Positions matter more than you think 5: Help looks different when you don’t have a village. 6: Cognitive load counts too. 7: Lower the bar (I know, I know). #MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome Pacing in the Real World Where stopping isn't always an option. Abby Nov 10, 2025 Sometimes pacing can feel like a luxury for people who have margins, people who have extra hands, extra hours, extra anything. What do you do when the world still expects you to operate like nothing has changed, even when your body has?

Pacing in the Real World

Where stopping isn't always an option.
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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social replied  ·  activity timestamp 2 days ago

2/

"Basically, your body has needs.

Your life has demands.

They don’t always shake hands.

So instead of perfection, think about harm reduction.

Not: How do I avoid overdoing it ever again?
But: How do I soften the impact when life doesn’t give me a choice?"

#MEcfs #LongCovid #CFS #PwME @mecfs @longcovid

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