Waiting for my Uber to the doctor's for my pain person appointment.
No idea what to expect. Quite nervous. Also running on 5 hours sleep and an intensely stressful day yesterday.
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The pain practioner was great, she is going to prescribe paracetamol and codeine. Told me to take codeine a max of twice a week. Also referring me to a physio.
There is nothing else they can do, recent research on antidepressants for pain show they mostly don't work, add in ND and no point trying (also I'd prefer not to).
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@alexisbushnell Is there an issue with taking antidepressants and being ND?
@LJClements8 not an issue per se but medications and drugs in general tend to affect ND brains differently.
For example I am incredibly sensitive to hormones but sleeping tablets will not send me to sleep.
The fact that antidepressants for pain are very ineffective anyway combined with me being ND implies that I would more than likely be in the "they don't do anything" group.
ADHDers tend to find that caffeine & other stimulants actually make them sleepy.
Brains are fascinating!
Also she thinks I'm very Autistic. And that I'm hypermobile but cos I used to be strong my muscles compensated for the joint bullshit - hence magically now hypermobile with long covid.
The hypermobility stuff is hitting me really hard, specifically because I feel like if I could manage exercise again then I could strengthen my muscles to support my joints again. But I can't.
It's another thing long covid has taken from me.
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@alexisbushnell The hypermobilty with ME/Long Covid issue is a really annoying vicious circle 🫂 Working with a physio and osteopath I managed to develop a small set of exercises which improved my hip/SIJ stability quite a bit and helps my daily mobility a bit too. Finding the right physio is key though.
@LJClements8 that's reassuring and hopeful, thank you!
does anyone in South Wales / VoG know what the situation is with GPs prescribing fitness stuff?
I'm pondering swimming to rebuild muscle strength and reduce the hypermobility pain, but wondering if it's worth me mentioning to the GP tomorrow in case they can prescribe sessions for me?
Staring down a Fibro/long covid based on most bloods coming back fine.
Possibly hormonal fuckery going on but they are weird results. He is referring me.
Iron level is 25 (normal range is 15 to 300.)
Oestrogen lower than the lab can count.
LH & FSH normal (with low oestrogen they should go up...)
I am... every single emotion and don't really know what to do with this information.
GP has referred to a gynaecologist for the hormonal mystery so we shall see where that goes.
@alexisbushnell Sending gentle hugs 
I don’t think I’ve got anything helpful I can share. It’s fab you have support for your pain, though. It sounds like you’re exploring some other useful options for you, too. I feel you on the confusion and all the emotions. Had different health stuff come up and do the same to me recently. 
@alexisbushnell The exercise referral scheme? Still running as far as I know. https://phw.nhs.wales/services-and-teams/wales-national-exercise-referral-scheme/
@alexisbushnell Very best of luck for a useful appointment!