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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  路  activity timestamp 3 months ago

馃У
"How I鈥檓 really doing"

https://meglobalchronicle.wordpress.com/2024/12/08/how-im-really-doing/

How appearances can be deceiving in terms of what people with ME can do consistently.

"So what people see when I post pictures of an outing are really exceptions based on adrenaline."

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

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How I鈥檓 really doing
Gepubliceerd op 8 december 2024
Yesterday, a good friend asked me what I am truly capable of doing. For example, whether I can get dressed and go downstairs every day. Whether I can make tea or coffee for myself.

My answer:鈥淣o, I cannot get dressed every day. In fact, I haven鈥檛 done that in ages. Making tea and coffee isn鈥檛 that easy. If I do, it鈥檚 at the expense of doing something else.

For a while I had a kettle with hot water next to my bed but I spilled too often while pouring and as a result burnt myself.

I go downstairs on good days to have my meal lying on the couch. That鈥檚 possible for about three to four times a week But today I washed my hair and then I can鈥檛 do that.

So what people see when I post pictures of an outing are really exceptions based on adrenaline.
How I鈥檓 really doing Gepubliceerd op 8 december 2024 Yesterday, a good friend asked me what I am truly capable of doing. For example, whether I can get dressed and go downstairs every day. Whether I can make tea or coffee for myself. My answer:鈥淣o, I cannot get dressed every day. In fact, I haven鈥檛 done that in ages. Making tea and coffee isn鈥檛 that easy. If I do, it鈥檚 at the expense of doing something else. For a while I had a kettle with hot water next to my bed but I spilled too often while pouring and as a result burnt myself. I go downstairs on good days to have my meal lying on the couch. That鈥檚 possible for about three to four times a week But today I washed my hair and then I can鈥檛 do that. So what people see when I post pictures of an outing are really exceptions based on adrenaline.
How I鈥檓 really doing Gepubliceerd op 8 december 2024 Yesterday, a good friend asked me what I am truly capable of doing. For example, whether I can get dressed and go downstairs every day. Whether I can make tea or coffee for myself. My answer:鈥淣o, I cannot get dressed every day. In fact, I haven鈥檛 done that in ages. Making tea and coffee isn鈥檛 that easy. If I do, it鈥檚 at the expense of doing something else. For a while I had a kettle with hot water next to my bed but I spilled too often while pouring and as a result burnt myself. I go downstairs on good days to have my meal lying on the couch. That鈥檚 possible for about three to four times a week But today I washed my hair and then I can鈥檛 do that. So what people see when I post pictures of an outing are really exceptions based on adrenaline.
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