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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 3 weeks ago

2/

"Basically, your body has needs.

Your life has demands.

They don’t always shake hands.

So instead of perfection, think about harm reduction.

Not: How do I avoid overdoing it ever again?
But: How do I soften the impact when life doesn’t give me a choice?"

#MEcfs #LongCovid #CFS #PwME @mecfs @longcovid

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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 3 weeks ago

2/

"Basically, your body has needs.

Your life has demands.

They don’t always shake hands.

So instead of perfection, think about harm reduction.

Not: How do I avoid overdoing it ever again?
But: How do I soften the impact when life doesn’t give me a choice?"

#MEcfs #LongCovid #CFS #PwME @mecfs @longcovid

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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 2 weeks ago

3/
From "Pacing in the Real World"

Another blogpost I liked a lot by this OT who specialises in ME/CFS & long Covid

Contains lots of practical tips. As she says,an emphasis is harm reduction rather than perfection

https://onelifelivedwell.substack.com/p/pacing-in-the-real-world

#MEcfs #LongCovid #CFS #PwME #Pacing @mecfs @longcovid

People are often told pacing requires consistency and rigid structure, as if symptoms respond to spreadsheets, but in years of working with clients, I’ve learned that the best pacing is responsive. Sometimes you can’t avoid doing the thing, but you can lower the cost of doing it.

Instead of the all-or-nothing approach (“Don’t overdo it”), try:

Do the thing differently

Do the thing slower

Do a little less of the thing

Examples I hear from clients:

Cut chores in half. Laundry becomes “just wash, fold later.”

Skip the second errand. One stop instead of three.

Delay what isn’t urgent. Dishes can wait. Replies can wait.

Sit for everything. Food prep, brushing teeth, makeup, folding clothes.

Sometimes the most radical act of self-preservation is sitting down.

Literally.
People are often told pacing requires consistency and rigid structure, as if symptoms respond to spreadsheets, but in years of working with clients, I’ve learned that the best pacing is responsive. Sometimes you can’t avoid doing the thing, but you can lower the cost of doing it. Instead of the all-or-nothing approach (“Don’t overdo it”), try: Do the thing differently Do the thing slower Do a little less of the thing Examples I hear from clients: Cut chores in half. Laundry becomes “just wash, fold later.” Skip the second errand. One stop instead of three. Delay what isn’t urgent. Dishes can wait. Replies can wait. Sit for everything. Food prep, brushing teeth, makeup, folding clothes. Sometimes the most radical act of self-preservation is sitting down. Literally.
People are often told pacing requires consistency and rigid structure, as if symptoms respond to spreadsheets, but in years of working with clients, I’ve learned that the best pacing is responsive. Sometimes you can’t avoid doing the thing, but you can lower the cost of doing it. Instead of the all-or-nothing approach (“Don’t overdo it”), try: Do the thing differently Do the thing slower Do a little less of the thing Examples I hear from clients: Cut chores in half. Laundry becomes “just wash, fold later.” Skip the second errand. One stop instead of three. Delay what isn’t urgent. Dishes can wait. Replies can wait. Sit for everything. Food prep, brushing teeth, makeup, folding clothes. Sometimes the most radical act of self-preservation is sitting down. Literally.

Pacing in the Real World

Where stopping isn't always an option.
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Tom Kindlon
Tom Kindlon
@tomkindlon@disabled.social  ·  activity timestamp 2 weeks ago

4/
2: Triage, a tool for days when everything feels urgent

When your brain is foggy and your body is loud, every task can feel
like a crisis.

Try this:

Must / Should / Could

Must = essential for safety or survival

Should = helpful, supportive, but flexible

Could = ideal, but optional

#mecfs #longcovid
@mecfs @longcovid

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