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JollyOrc
JollyOrc
@jollyorc@social.5f9.de  ·  activity timestamp 3 days ago

I'm not usually posting here with my work-related hat on, but today is an exception:

There's this project I'm working on, which aims to make personal health data accessible and useable for all european citizens, as part of the MyHealth@EU initiative.

And because I'm a product person, I'm asking people what their needs are. So, I'd be very happy and grateful if you could take about 2 to 5 minutes of your time and answer this survey here: https://survey.charite.de/myhmyh/

It's completely anonymous, we don't ask any identifiable data from you, and the results will help us make a better thing.

Of course, reposting and spreading this far and wide is completely fine and appreciated! #fedihelp #health #europe #followerpower #science

Questionnaire | page 1

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Chip Butty
Chip Butty
@otfrom@functional.cafe replied  ·  activity timestamp 3 days ago

@jollyorc worth stealing any ideas from Ben Goldacres work? https://goodlawproject.org/cory-doctorow-health-data-it-isnt-just-palantir-or-bust/

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JollyOrc
JollyOrc
@jollyorc@social.5f9.de replied  ·  activity timestamp 2 days ago

@otfrom that is actually a good chunk of the european EHDS - the same concept is called "Secure Processing Environments" there.

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Chip Butty
Chip Butty
@otfrom@functional.cafe replied  ·  activity timestamp 2 days ago

@jollyorc cool. Most of the things called secure processing environments that I've had experience with are physical computers with extra physical security talking to centralised systems. I'm glad you're taking a different approach

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