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Carmen-Lisandrette
Carmen-Lisandrette
@carmenlisandrette@mastodon.social  ·  activity timestamp 17 hours ago

Whelp, it was lovely having private medical records. Shame it didn't last.

#newzealand #managemyhealth #nz

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Strypey
Strypey
@strypey@mastodon.nzoss.nz  ·  activity timestamp 4 months ago

Here's a policy I'd like to see included in a comprehensive digital-age privacy protection bill;

If a company stores people's personal information, they must supply;

* a single-click way to delete an account and all its data

* a phone number those people can call and get immediate assistance, or failing that, an automated callback

* an address those people can email and get a response within 48 hours. In case they want to have a written record of their interaction with the company

#PolicyNZ

Strypey
Strypey
@strypey@mastodon.nzoss.nz replied  ·  activity timestamp 4 months ago

A couple of months back, I evaluated the privacy policy of ManageMyHealth.co.nz (MMH);

https://mastodon.nzoss.nz/@strypey/114862089185059650

TL;DR Nuke it from orbit, it's the only way to be sure.

Since then, I've been getting nagmails from MMH trying to get me to use their platform. Today I tried figure out how to get this spam to stop.

(1/?)

#privacy#HealthIT#ManageMyHealth

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Strypey
Strypey
@strypey@mastodon.nzoss.nz  ·  activity timestamp 6 months ago

Well, I finally got around to evaluating the #ManageMyHealth portal;

https://managemyhealth.co.nz/about-us/

When my GP suggested I sign up with it, I presumed it was a public service offered by Te Whatu Ora, like My Health Record;

https://www.tewhatuora.govt.nz/health-services-and-programmes/digital-health/my-health-record

So what do I think of Manage My Health? Not impressed. This is a privately-owned, for-profit digital platform, that I can't be certain isn't #DataFarming patients who sign up with it.

(1/?)

#privacy #PublicService #PublicHealth #HealthPortals

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