My family and I are heading to #Melbourne in January, not just for a visit but to live. The process of packing up your entire life and shipping it to another country is...challenging. I'll post more about the exact circumstances of that at a later date - but suffice it to say, I have thoughts to share about the broken social contract in Aotearoa (and how it affects people with rare disorders specifically.)
I'm absolutely gutted to be leaving my community behind, including my job where I work with volunteers and youth workers around the country to support our rangatahi. I would prefer to be staying, but I can't get the treatment I need and my symptoms are progressing. It's a choice of staying here and having a long, painful death - or moving to Australia, being paid more, and living a full life into my old age. So...yeah. It's become an obvious choice.
As a result, one thing I'm going to need is a new job. Community-based, for-purpose work is my preference. Any tips, connections, or thoughts are welcome!